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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Idiopathic pulmonary fibrosis
- The Q/A was not dealing with a CF topic and was therefore not relevant for the english Archive.
- 24.11.2008
- How long Pulmozyme
- Q/A was not dealing with the disease of CF and therefore irrelevant for the english Archive.
- 24.11.2008
- Greasy and smelly stools
- Why do people with CF have stools that look greasy and smell badly?
- 24.11.2008
- Called for a retest
- My baby had the heel prick test and has been called for a retest. I am going out of my mind with worry. Does this mean they have identified the defective gene? Does every suffered diagnosed always get called for the dreaded retest?
- 24.11.2008
- Pseudomonas (2nd question)
- I just asked several questions about Pseudomonas, now I got some more: To probe a patient (CF, 30 years old, under artificial respiration, pseudomonas positive, in poor condition) we use 50 ml bladder syringes [in German: Blasenspritze]. Most team members afterwards rinse them with tab water and put them on some piece of cloth to let them dry. Isn’t there a risk in this procedure? Should they rather always use a new syring? (Currently it is being changed twice a day). Can you give me some advice how to pass Kreon through the stomach tube? We tried several ways. At the moment we grind it because the tube got stuck every third day.
- 24.11.2008
- Permanent antbiotic treatment
- Dear ladies and gentlemen, our child has been told to undergo a permanent antibiotic treatment with a cephalosporin. I am afraid of the side effects, especially because I have noticed that our daughter gets very nervous and hyperactive when getting antibiotics. Is that a general effect or are there different effects of the antibiotics on the "nervous system"? In the Roche-Focus has just been written that the CF Foundation recommends Azithromycin for a permanent antbiotic therapy? Thanks for your information.
- 24.11.2008
- Watering of the garden with cistern water
- We have moved to a developing area, where the acquirement of a rain water cistern is an obligation. As a consequence, many neighbours use the water for the garden (Sprinkler, garden hose) and for the high-pressure water blaster. The water jet does often reach the street and is easy to see there (the asphalt is getting dark). Is it sufficient to stay away from this area or are the drops transported further, so that there is a danger for me (35 years old, CF)? And what about in case my children (CF negative) had contact to such water – do I have to wait until they are dry again before I touch them?
- 24.11.2008
- Pneumococcal Vaccination
- Is it reasonable to refresh a pneumococcal vaccination with CF patients regularly – and if so, how often? (MHH Hannover, CF Clinic)
- 24.11.2008
- Lung rupture
- Is there any method to regularly control the lung in a way that 100 percent of the complete area are examined in order to find out if there is a new lung rupture, without the need for the patient to swallow a tube? I tried to obtain info via telephone and was referred to the expert advice. I hope you can help me. Bye for now, best greetings,
- 24.11.2008
- Green house
- Dear expert team, Should an individual with CF avoid green houses such as botanic gardens? What about the bacterial conditions? Greetings and Thanks!
- 24.11.2008
