Topics

CF patient
CF patient, 19 years old, diagnosed with CF as a baby and has staphyloccus aureus. Diagnosed with pseudomonas a few months ago. My question is: should the patient take tobramicina, as when he was last tested for bacteria and had sputum taken, he did not have pseudomonas any more. Can pseudomonas disappear or the test was not done properly? Thank you. Mira Zdravkovic
20.11.2008
Cough
My daughter, 9 years old, has CF and we have often exacerbations. When on antibiotics we are OK, but after 2-3 weeks bad cough usually begins. Only Cefuroxim is effective as oral antibiotic. How long can antibiotics be used and are there other similar antibiotics?
20.11.2008
Jogging or Walking?
Hello, I am suffering of CF and since some months ago, I am able to motivate myself to do sports regularly. I am doing walking (without sticks) and do not notice any change of my FEV1 result, but a change of my pulmonary situation as well as an improvement of the mobilization of secretions. However, I am thinking about, if jogging would be better than walking. Many people are doing jogging and laugh about walking. Is it sensible to change form walking to jogging? Is jogging better for the health? Is the rate of success for the health bigger with jogging?
20.11.2008
Paresis of the diaphragm
Dear expert team, for several months, I am suffering of an idiopathic paresis of the diaphragm. The conductance of the phrenical nerve is diminished and as a result the diaphragm shows a slight high stand on the right side. I have already experience in CF for 38 years and I did loose 800 ml of lung volume due to the paresis (from 3.4 to 2.45 liters). Infections are seldom...since 1992 about 6 times i.v. antibiotic courses because of the finding of Alcaligines. I am not Pseudomonas positive, no diabetes, but a severe malnutrition with a BMI of 16, (177cm 51 kg), for 2 years I know about the diagnosed osteoporosis, t-score 2.7. I have the question, if there are any case reports in the CF-register of a paresis of the diaphragm and if my mutation, my genotype dF508:405+1G->A probably is the cause of the problem...and above all: how can this paresis be treated? Greetings from Switzerland
20.11.2008
Vital fungi – Reishi
Hello, can you tell me something about vital fungi in the therapy of CF? I am suffering from CF and have tried some month ago some so called vital fungi in the form of fungus- powder tablets. The Reishi fungus showed the best effect. I had the impression to breathe more easily and to sleep more deeply and more calmly at night. Can you tell me if it is worth to invest in Reishi-tablets? Or should I better do without such a kind of natural medicine?
17.11.2008
family planning
Q/A was not relevant for the english Archive as dealing with country specific insurances questions
17.11.2008
Piperacillin Allergy
Would you recommend desensitisation in a 16 year old boy who has had a generalised itchy erythematous reaction to piperacillin on 2 occasions? He currently has an exacerbation & is now growing 2 stains of pseudomonas both sensitive to pip but one resistent to gent and both resistent to cipro. He has recently had ceftaz gent. If so can you recommend a regime?
17.11.2008
Experience with treatment in China?
Dear expert team members, I believe that your experiences could help me to choose the right sources of information. Have you ever heard something interesting about Chinese medicin methods particularly physiotherapy methods focused on CF patients? Could you recomend any realated information sources please? I am interested to check the posibility to support our regular CF treatment by systematic exercising and herbal therapy. Possibly with something else. Thank you very much Roman Krapka
17.11.2008
Pneumothorax
Hallo, our son is has been hospitalized for three weeks now because of a pneumothorax. Agglutination with glucose/talcum did not work. Now surgery is considered. Unfortunately his condition is very poor: His BMI is 13.8 and his lung function 27%. How is this surgery performed and how much success may we expect? Should this treatment be performed in an experienced CF clinic or can this be done in every clinic with thoracic surgery?
17.11.2008
"Q/A not relevant for the english Archive"
Q/A was not relevant for the english Archive
17.11.2008
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