ecorn-cf: App. question list

Enter your username and password here in order to log in on the website:

Topics

Therapeutic equipment: Hello, I have a patient, six years old, who has a very good general condition and is pseudomonas-negative… I would like to prescribe him a trampoline but I do not know if the health insurance is covering the costs. With trampoline I mean this all-weather trampoline for outside that is so fantastic from a therapeutic point of view. Now my question: Can I prescribe this or is this doomed to failure from the beginning? Up to know he has not received any of such therapeutic equipment. "Sport-Thieme" e.g.offers it for the price of 831€. Thank you for your help.; 13.03.2008

Hygiene in the office of a physiotherapist: I am treating as a physiotherapist several patients suffering from CF in my office. Since lately, I have a patient with an MRSA (methicillin resistant S. aureus) as well as B. cepacia germ. How are the possibilities to go on treating these patients in the office without "injure" the official hygienic recommendations??; 07.03.2008

Standardized CF care: Could you please inform me which medical facilities in Czech Republic are able to provide care for a CF patient at the required standard level? Thank you; 15.02.2008

Diagnosis during pregnancy: Hello, My sister is in her 6th month of pregnancy. Since there is CF in our family she underwent an amniocentesis and the child carries both defect genes. When the last ultrasound scan was done everything was ok organically (intestine, etc.). Should my sister go the a CF ambulance before birth and also deliver there? Or is it sufficient to deliver in a hospital with children's hospital and go to an ambulance later? Or depending on what should be make a decision?; 15.02.2008

Consultation hours for adults: Hello, I would like to know where special consultation hours for adult CF patients are scheduled in the German speaking region? Many thanks.; 15.02.2008

Pseudomonas aeruginosa: How can you avoid Pseudomonas aeruginosa infection? What should be avoided? Sinks and flower vases?; 15.02.2008

Specialised centers and organizations: I am a student and am writing my final thesis on the topic of Quality of Life for Adolescents and Adults with CF. I would like to ask whether you can advise me where I can find an overview or more detailed information about all specialised centres and organisations related to CF? I have only found a fraction of this information on the internet. Thank you for your answer, Anna M.; 15.02.2008

IV at home: Dear expert team, I hope you can help me. My son needs an IV therapy now and would like/should do it at home because there are rarely beds for CF patients in the hospital in charge. Is there a company in the Vienna [Austria] area offering such therapy? The Fresenius company does not offer it any more. Best regards, Gerda Schmit; 15.02.2008

Amyloidosis in CF: Dear expert team, Do you know an expert who is well experienced in amyloidosis in Cystic Fibrosis? Especially the kidneys are severely affected by the amyloidosis. The FEV1 is approx. 35%. A chronic colonization with pseudomonas exists for many years. Age 45 years. Many thanks for your answer.; 15.02.2008

Inhaler: Which new insights are there regarding the e-Flow Rapid what the remaining rest in the inhaler is concerned? Thank you M. Russy; 15.02.2008