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Topics
- bronchial stent
- This morning, I saw on TV that it is possible to put a bronchial stent which allows to increase respiratory function and avoid oxygen therapy for some respiratory diseases. I have oxygen and I ask for the possibility of this treatment in cystic fibrosis.
- 01.02.2016
- Staphylococcus aureus
- Hello, My daughter (5 years old) has CF. The last sputum exam shows Staphylococcus aureus infection (2 strains). She is under antibiotic treatment for 14 days. We have to stay 10 days with my father who is suffering from cancer and undergoing chemotherapy. I wanted to know if it would be dangerous for my father that my daughter is a carrier of Staph and whether its needs special precautions or waiving this stay. Best regards. Thank you.
- 01.02.2016
- Staphylococcus aureus
- Hello, The 2 last sputum analysis of my 8-year-old little son showed Staphylococcus aureus. However, no antibiotic was prescribed. A priori, the CF Center does not find this alarming. Is it because there are colonization thresholds? Thank you for your answer.
- 01.02.2016
- life expectation of CF nowadays
- My son is born in 2015 with the classical form of CF. What is the life expectation of a CF patient born in 2015?
- 01.02.2016
- Negative gene sequencing and negative sweat test
- Can you rule out cystic fibrosis with a negative gene sequencing and a negative sweat test? Is the sequencing reliable and able to rule out the disease in a child? Thank you very much
- 01.02.2016
- Intermediate sweat test
- Hello, I ask myself a lot of questions after reading one of your answers to a subject. You said in this response that the sweat test should be less than 30 µmol/l. My 16-months-old daughter has CF (diagnosed at 1 month) with a DF508 mutation and another mutation of class 5 G3272-26A and a sweat test at 75 ... She is currently moderate pancreatic insufficient with 167 for the last fecal analysis. She has no weight or growth problems and ther stool is "normal". The sweat tests performed on my 4-year-old son at the CF Center were 34 and 35 µmol. The Professor of the CF center told me that our son was not suffering from CF. At the time of his birth in 2010, he had performed the Guthrie test and I think it was negative as we had not been contacted. He is now 5 years old and has had a lot of bronchitis since birth in the winter. We put it down to the school etc, but reading your answer, I ask myself questions knowing that my daughter has two specific mutations. My son has a growth curve excellent view above the norm. Is it possible that my son has cystic fibrosis?
- 01.02.2016
- Influenza vaccination
- Hello I have a 3y little boy with cystic fibrosis who must be vaccinated against influenza. He has a runny nose right now. Can he be vaccinated despite that? Thank you for your answer. Best regards
- 28.01.2016
- Inhalation devices for CF patients
- Is there a good alternative for the e-flow®? We inhale three times a day (two times Mucoclear® 6% and one time Pulmozyme® and realize with the e-flow® a rapid decrease of the inhalation power. With a new nebulizer, an inhalation of one ampoule takes only about 6 minutes, however after some time (2-3 weeks) the inhalate comes out more and more less concentrated, and the inhalation of one ampoule takes markedly longer. The inhalation is then markedly less effective, the mucus losens much lesser. And this in spite of the recommended clearance by Pari® with the easycare device and even with regular clearance with Kukident®-solution. This short life duration of the nebulizer is going on our nerves. Are there any other devices for CF that could be recommended? Many thanks for your experience!
- 28.01.2016
- State of research
- Dear expert team, I am interested, if there are already any studies, that report how may people with CF are in Germany that have been diagnosed late. I mean here at adult age and especially older than 40 years. Many thanks in advance and best regards, E. [name removed from Ecorn-CF]
- 28.01.2016
- Child in foster care
- Hello, my granddaughter is placed in a foster home following a court ruling for ill-treatment. I would like to know the percentage of CF children is placed in foster homes and having a normal life nonetheless. Best regards
- 28.01.2016
