Topics

Alimentation
Hello, I am a mother of a three-year-old CF child. For 15 days, it's difficult for him to eat. I wanted to know if it's normal or if I should consider another nutrition? Thank you.
14.01.2016
High fat diet
Hello, CF patients must have a high fat diet. However, can they take any kind of fat? Should one prefer vegetable fats rather than animal fats, raw rather than cooked fat? Quantity OK ... but what quality? In advance thank you for your reply.
14.01.2016
querry
I am starting my pregnancy and according to the doctor’s suggestion I and my husband were tested for >98% of CF mutations at Horemio. The results show that I have a change at the sequence T854T and my husband two changes at the sequence 1716G/A and 4521G/A. I would like to know if the baby inherits all three changes, is there a chance of suffering from CF? (In case there are no other mutations, since it is impossible to exhaust all possibilities). Thank you!
14.01.2016
Transmission of Pseudomonas possible while jumping on the trampoline?
Hello, my daughter is 7 years old, suffers from CF and since the beginning of the year we fight with Pseudomonas, still hoping to be able to erdicate it again. Now my daughter does trampoline jumping in a sports club for a short period of time. At the last time it came out, that for 30 minutes, the older jumpers are already overlapping in the small gym to warm up. They run around the trampolines while my daughter is still jumping on them. Now there is also an older girl with CF under the trampoline jumpers. How possible is a transmission from one human to another? Should I get my daugher 30 minutes earlier in order to avoid a meeting of the two? My daughter whould then be in the gym for an hour and could do another half an hour if she likes. Or is there no risk in case of using the gym together if direct contact is avoided? I am insecure because of the worry to get the other girl infected or to be reinfected oneself, if we hopefully will get rid of it again. Many thanks for your answer
14.01.2016
Target values for pancreatic elastase in case of CF
Dear ladies and gentlemen, I would like to ask a question. Probably you could help us? Shortly about the background: We are parents of a 2.5 year-old happy daughter with CF. Our pediatrician (who is not part of our CF center team) directed the investigation of a stool sample of our daughter, after she listened to a talk of Prof. Ellemunter, that we also attended. She would like to have the value for the pancreatic elastase measured. We favour this very much, especially as gastro-intestinal investigations do not seem to belong to the standard investigations of our CF center, according to our impression. Unfortuantely our pediatrician has not the target values that were reported by Prof. Ellemunter as to be the aim. Could you help us in here further? We would be very pleased about an answer.
14.01.2016
Antibodies
Dear expert team, I have a question on the topic "antibodies"! I read from former answers on the topic that if one cannot find antibodies against certain germs (e.g. Pseudomonas) respectively one cannot find any germs either, one can suppose a successful eradication. However my CF center has always told me, that if a colonization, no matter if with Pseudomonas, Staphylococcus aureus, Aspergillus etc., took place and antibodies have been produced, they could always be detected. The version, that only if the antibodies are negative again, one can assume a successful eradication, is new to me. Please help clarifying this! Many thanks, I.D.
14.01.2016
DMSO dimethyl sulfoxide in case of CF
Acoording to Dr. Hartmut Fischer, DMSO is a channel opener and acts against scarring (CF?!). In the laboratory they are working on the chloride channels with DMSO. It keeps the chloride channel open. Does it make sense to use DMSO orally or transdermally in case of CF? Are there any studies about this? Many thanks
11.01.2016
Physiotherapy and hygienic recommendations at school
Hello, The chest physiotherapy will take place sometimes at school. Can you tell us the hygienic recommendations for a good chest physiotherapy? What kind of room is needed? Class room, meeting room... What recommendations are there for aeration or cleaning? Thank you Best regards
11.01.2016
Hydrogen peroxide
I have read, that 0.3% hydrogen peroxide could be helpful if used with a nebulizer in case of lung diseases. Furthermore it says that i.v. treatments in case of COPD/emphysema can stop the progress of the illness and partly even improve it. Are there any experiences in connection to CF? I could imagine that hydrogen peroxide could also have unfavoulrable effects as an oxidant...? Best regards, IE
03.01.2016
fatty stool
I have a 2.5 year-old son. Till his first year of life he was at 90th percentile of the weight-height curve, but now he is at the 50th. Last summer he had pneumonia for the first time and 2 months after diarrhea for 20 days that was treated with diet. Generally speaking he does not get sick easily. What worries me is that after the diarrhea his stool is fatty, it floats and it is smelly. Do you think that we need to get tested for CF?
22.12.2015
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