Topics

Influenza vaccine
Hello, I am a single mother of a CF little boy (3 years old). I wanted to know if the new spouse of the father of my child and her daughter also have to be vaccinated against influenza because his father will benefit from joint custody every 2 weeks. And what about my own new husband?
30.11.2015
Fog
Hello, what recommendations can you give us in foggy weather when the CF child is in school? Should he stay in the classroom during recreation in those days? My 7-year-old son has mainly affected the respiratory level. He's often obstrucitve and has two intravenous treatments per year. Thanks for your help
30.11.2015
dishes
Hello How to wash the dishes of CF children? How to use the dishwasher to guarantee the disinfection and with which product? With what program? For the moment, I wash the dishes by hand + a product disinfecting during 5 minutes. Thank you for your answer.
30.11.2015
Maternity visit
Hello, I am already pregnant and mother of a little boy with cystic fibrosis; I wish to know if there were risks for him to come to see me in the maternity where his little brother will be born or if it is better to wait for the return at home (which would enormously grieve me). If there is no problem, are there any special precautions to take? Thank you for your answer in advance.
30.11.2015
Substitution of vitamins
Hello dear expert team, at the moment one can read in the press, that vitamin tablets respectively antioxidants could have a damaging effect, especially in cancer patients. I (CF patient, female, 38) ask myself, if I should go on taking my vitamin tablets. Could there be a connection between the increased cancer risk in CF patients and the pemanent intake of vitamins? If the serum levels of vitamins are in the normal range, should vitamins be substituted in spite of this (especially fat soluble ones), taking the new knowledge into account? Many thanks for your answer in advance.
30.11.2015
3 MRGN in case of CF and fellows
Hello, I (CF) have a chronic colonization with germs as most CF patients have. One of the germs is 3 MRGN and from time to time there occurs another one that is at least 3 MRGN or even 4 MRGN. In general, one separates ill people, old people, children and pregnant women from patients with these problematic germs. Are CF patients therefore a risk for those groups or is the situation different, as it deals with a colonization within the body and therefore the germ can only be found in the sputum, which is not accessible for other people. Many thanks for your support
30.11.2015
Moving to the north of Germany
Dear expert team, My son is 4 years old and suffers from CF. He is doing relatively well and he lives a normal life. We live in a city in the middle of Germany, but we will move to the North of Germany, soon. My question is where to go best: North Sea or the Western part of the Baltic Sea, apart from the climatic specialties? I thank you very much in advance, E.
30.11.2015
Staphylococcus
Hello At birth my baby boy has been colonized with MRSA in motherhood. After antibiotic treatment for 1,5 months, no trace of this staphylococcus was found in these monthly microbacterial sputum. Today, at the age of 13 months, he has this time a sensitive staphylococcus to antibiotics. I read that this type of staph could only be catched via skin contact (hands). Out at home, we are very careful to always have clean hands and also our relatives (soap + hydro gel). So we conclude that this type of germ can also be transmitted by clothing or just by a touch of cheeks. Can you confirm this? We mistakenly thought until now that only hands could pass it on.
24.11.2015
Pseudomonas aeruginosa
Hello Thank you for informing me if a Cf child may be contaminated by Pseudomonas aeruginosa only by direct contact or not. So far, CF center warned us about this bacterium and its environment (stagnant water, wet ground, siphon etc.). However the mode of transmission is not clear. The fact of being in a room where are plants, muds with cut flowers, some stagnant water and some moulds is enough to be contaminated or is the transmission of the germ made by direct contact of the colonized surface? Thank you for this clarification, Mum of a CF child of 13 months
24.11.2015
Mucomyst® [n-acetylcysteine]
Hello, Some CF centers prescribe Mucomyst® (n-acetylcysteine), others not at all. There seems to be a reserve by some doctors about this drug still effective to thin the mucus. I want to know why. Thank you
24.11.2015
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