Topics

Moving to the north of Germany
Dear expert team, My son is 4 years old and suffers from CF. He is doing relatively well and he lives a normal life. We live in a city in the middle of Germany, but we will move to the North of Germany, soon. My question is where to go best: North Sea or the Western part of the Baltic Sea, apart from the climatic specialties? I thank you very much in advance, E.
30.11.2015
Staphylococcus
Hello At birth my baby boy has been colonized with MRSA in motherhood. After antibiotic treatment for 1,5 months, no trace of this staphylococcus was found in these monthly microbacterial sputum. Today, at the age of 13 months, he has this time a sensitive staphylococcus to antibiotics. I read that this type of staph could only be catched via skin contact (hands). Out at home, we are very careful to always have clean hands and also our relatives (soap + hydro gel). So we conclude that this type of germ can also be transmitted by clothing or just by a touch of cheeks. Can you confirm this? We mistakenly thought until now that only hands could pass it on.
24.11.2015
Pseudomonas aeruginosa
Hello Thank you for informing me if a Cf child may be contaminated by Pseudomonas aeruginosa only by direct contact or not. So far, CF center warned us about this bacterium and its environment (stagnant water, wet ground, siphon etc.). However the mode of transmission is not clear. The fact of being in a room where are plants, muds with cut flowers, some stagnant water and some moulds is enough to be contaminated or is the transmission of the germ made by direct contact of the colonized surface? Thank you for this clarification, Mum of a CF child of 13 months
24.11.2015
Mucomyst® [n-acetylcysteine]
Hello, Some CF centers prescribe Mucomyst® (n-acetylcysteine), others not at all. There seems to be a reserve by some doctors about this drug still effective to thin the mucus. I want to know why. Thank you
24.11.2015
Nursery
What kind of childcare is recommended for a 2 months old CF baby? Home care or childminder?
24.11.2015
Pancreatic Insufficiency
Hello, My 14 months old CF daughter was diagnosed one month after her birth: DF508 and G3272-26A mutations. After her birth, she was 237 for fecal elastase, which means she was "pancreatic sufficient." In her annual report last month (14 months old), the fecal elastase showed a rate of 167. She is very well, her stools are normal and she measures 77cm with 11kg, so she has a very good evolution. My question is: I read on different sites that a normal elastase exceeds 200 and on other that it's 150. What is "standard"? Does the drop of fecal elastase mean that she should expect to become pancreatic insufficient? The ultrasound showed that her pancreas was "fibrous": are there consequences on pancreatic insufficiency? For now, our CF center has not prescribed pancreatic enzymes since there is no sign of pancreatic insufficiency. We monitor and will control elastase during the year. About respiratory symptoms: she has a score of 24/25, what does this score mean? Secretions were visible in her right lung, with daily sessions of physiotherapy she has from birth on. Can this go away? Is it serious ? She's colonized with staph aureus but asymptomatic since birth. Thank you for your valuable answers, Thank you again. A.
24.11.2015
CF?
Hello, my 3-year-old daughter has had several anal prolapses. She has quite some mucus in her throat up to 3 weeks after her colds. The sweat test was negative (27 nmol/l for the measurment of conductivity), regular stool elastase (over 500) and 50 mutatios in the test were negative. The mother and the father suffer from sinusitis every year (mother, father acute and chronic). CFTR-gene sequencing of the father and the sweat test were negative. The 5th test of mutations of the mother was negative. The height of the child is small (the elder sister is even smaller) and the weight is normal. Both suffer from hard constipation. Is CF possible? Thank you
15.11.2015
Waiter in catering business
Hello, I have employed in my catering business a person suffering from CF. In order to protect her of eventual health risks, I would like to know, if I can put her on cleaning the guests toilets sporadically, or if I should better not mention it in her description of her duties. She herself does not demand a special treatment, the protection of her health corresponds to the guiding principles of our company. Can the prepared cleaning water on the cleaning car be used for more than 12 hours? A new rag is used for every cleaning. Do we have to take more things into account? Many thanks for your answer.
15.11.2015
porta neb
Hello, We changed my e-flow device for a porta neb by respironics Philips. I don't know this device so I am not very trustfull particularly for the pipe and the powered air. I'm questionning myself about the absorption of antibiotics. Can you give me some more informations? Best regards.
09.11.2015
Impaired glucose tolerance and diabetes
Hello, a CFTR-related diabetes is always preceeded by the diagnose IFG (impaired fasting glucose) or IGF (impaire glucose tolerance). The other way round: do all CF patients with IFG and/or IGT develop CF-related diabestes? Or are the imapired values of IFG and IGT common in CF and do not predict a coming diabetes? Best regards,
09.11.2015
<<  < 49 | 50 | 51 | 52 | 53 | 54 | 55 | 56 | 57 | 58 | 59 | 60 | 61  ...  341 >  >>