Topics

Creon®
Hello is Creon® effective if it's taken during the meal (because it's difficult to gauge the quantity of food which will be consumed by a young child, so could we give one Creon® at the beginning and then a second during the meal if the appetite is there)? And in case of forgetting, is taking it at the end of the meal interesting? Thank you
12.10.2015
What carpets? Kilim?
Hello, I am in couple with a CF woman, and we wonder if some carpets are preferable for inside, or if they are all disadvised? If the woolly carpets retain germs, the kilim is flat and solidly braided. But could it suit? Thank you for your lighting.
12.10.2015
Aspergillus and cortisone
My pulmonologist put me under symbicort (budesonid + foromoterol for inhalation) because of the radiography, nothing visible. It has been 3 days since I take it but today I had the results of the expectoration exams and I see a mycosis with aspergilus fumigatus. Do I have to continue the cortisone? I had several times some voriconazole and it is still in my pharmacy; while waiting for my pulmonologist could I begin voriconazole?
12.10.2015
Swimming pool with salted water
Hello Is it dangerous for a CF patient to bathe in a swimming pool of salty thermal water? There is, in Germany, a thermal swimming pool (Solymar) which uses salted (3%) thermal water. I read that the salinity of the sea water oscillates between 2 and 4 %. Is it risky to go with our child (by avoiding showers and footbath)? Thank you very much
09.10.2015
Asthma and cystic fibrosis
My 3-year-old daughter makes regularly asthma attacks in spite of a thorough treatment with fluticasone. Could this deteriorate faster her disease?
09.10.2015
Increased IgG value
Dear expert team! I would like to hear your judgement probably also your advice concerning the following situation: Immunoglobulin G value actually 2100!! Actual colonization with germs: achromobacter (2 different strains), Staphylococci. Highly allergic 17-year-old girl, also again and again Aspergillus in the sputum (is at the moment treated with itraconazole). Is there, according to your opinon, a chance to lower the IgG value also with oral antibiotic therapies or is only an i.v. antibiotic therapy helpful respectively more sensible with such a high value? I am aware, that the Aspergillus is more reflected via the IgE value, however can that rather chronic colonization not also influence somehow the IgG value? This values hints at a chronic inflammation, doesn't it? What can one do in order to control this value partly? Many thanks for your appreciated answer, D.
09.10.2015
Toilet at school
Hello At school, my 5-year-old daughter with cystic fibrosis used the toilet reserved for the adults. This year, it is not possible and we reserve her one toilet for her own. What is best? Thank you for your help.
09.10.2015
Effects of cigarette smoke in the sleeping room
Hello, my partner is smoking in the sleeping room. When I am there (I suffer from CF), he smokes out of the window. We are not living together yet. However I have the impression, to cough more there during the night compared to my home. Besides the reduced sleeping comfort, can this have negative longterm effects on my lung function?
05.10.2015
Actinomycosis
I have a question about the therapy of actinomycosis, that is a ray fungus, I cannot kill it. Please give me some advice.
05.10.2015
Pottery making
Again about pottery making: I have no good feeling, even if my daughter wants very much to do it. Clay is a humid material, that can only be processed if it is still humid. If a piece in the lesson is not finished one day, it is covered with a plastic sac and is finished one week later. At least at that timepoint, that humid germs can have occurred?
03.10.2015
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