Topics

Hope for cure
I am a carrier of two mutations, G542X and 2183AA>G. Are there any grounds for hope for a cure in my case? If yes, what does it mean and what will change in my everyday life? If not, is there anything being done for my mutations, or are they rare and indifferent to the researchers?
19.09.2015
Pseudomonas aeruginosa
Dear experts, Is there a test available that can test the presence of Pseudomonas aeruginosa in the water?
19.09.2015
Genotype 7T/7T
My husband was tested for mutations in the CFTR gene, and in the results it writes: “ the genotype 7T/7T was detected in the sample in relation to the polymorphic region of the CFTR gene”. Does the above mean that my husband is a carrier of the disease? The reason for him being tested was oligoaspermia.
19.09.2015
Contacts between patients
Hello, I would like to know measures to be taken when CF patients are in the same school? Thank you in advance Cordially
15.09.2015
Visit (tropical) orchid garden
Dear Doctor, Can a CF patient visit a tropical indoor garden? Or is there a risk to get a Pseudomonas infection? Thanks a lot for your answer!
15.09.2015
Basins
Basin Is it true that it is better to let run the water for a moment in the basin in the mornings in order to flush through the bacteria in the sink? Thank you for your advice on this.
15.09.2015
Aquagenic Wrinkling of Palms
Hello, My dermatologist diagnosed me an Aquagenic Wrinkling of Palms: does it necessarily mean that I have cystic fibrosis? Regards.
15.09.2015
Maintenance for musical instrument
Hello, I'd like to know the advices of maintenance which you recommend for wind musical instruments. Because of their price, I see myself bad adviser of javel baths. Brass instruments can be defused and immersed again but no wood instruments!!!! I have a young patient who plays trumpet... Thank you for giving me your experience.
15.09.2015
Sterilization of the eflow kit
Is it possible to sterilize the eflow kit with water (no calcareous) from the tub in a pan and how much minimum time is requiered to have a perfect sterilisation?
15.09.2015
Baby bottle brush
Hello My CF daughter still takes feeding-bottles every morning and every evening: what is the frequency for change the baby bottle brush which cleanes feeding-bottles? I clean it correctly after every use but what if this bottle brush is bacteriologically dangerous for my daughter? Thank you
15.09.2015
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