Topics

Visit (tropical) orchid garden
Dear Doctor, Can a CF patient visit a tropical indoor garden? Or is there a risk to get a Pseudomonas infection? Thanks a lot for your answer!
15.09.2015
Basins
Basin Is it true that it is better to let run the water for a moment in the basin in the mornings in order to flush through the bacteria in the sink? Thank you for your advice on this.
15.09.2015
Aquagenic Wrinkling of Palms
Hello, My dermatologist diagnosed me an Aquagenic Wrinkling of Palms: does it necessarily mean that I have cystic fibrosis? Regards.
15.09.2015
Maintenance for musical instrument
Hello, I'd like to know the advices of maintenance which you recommend for wind musical instruments. Because of their price, I see myself bad adviser of javel baths. Brass instruments can be defused and immersed again but no wood instruments!!!! I have a young patient who plays trumpet... Thank you for giving me your experience.
15.09.2015
Sterilization of the eflow kit
Is it possible to sterilize the eflow kit with water (no calcareous) from the tub in a pan and how much minimum time is requiered to have a perfect sterilisation?
15.09.2015
Baby bottle brush
Hello My CF daughter still takes feeding-bottles every morning and every evening: what is the frequency for change the baby bottle brush which cleanes feeding-bottles? I clean it correctly after every use but what if this bottle brush is bacteriologically dangerous for my daughter? Thank you
15.09.2015
3mrgn
Hello, A friend of mine works in a domestic nursing service and got in contact with a patient who has this disease. Since then he has been doing badly. He went to the doctor and they took some samples and sent them to the laboratory, but the results will only be there next Monday. Can anything happen in the meantime? Can he still be treated afterwards? Does any danger exist?
15.09.2015
Cystic fibrosis with 66 years
At the age of 16 years I was tested positive for cystic fibrosis. My brother who also had CF died at the age of 38 years (1985). Till 2005 I had no problems. Then the lung infections etc. began. I lived in Spain and I was not treated CF specifically because the finding was not taken seriously; not even when I had a genetic test done on my own costs which was clearly positive. In 2012 I moved to Austria. Here, the sweat test and also the genetic test were repeated. The result of both showed clearly that I have cystic fibrosis. As one might expect, I was also tested positive for pseudomonas. Since then everything has been tried to eradicate the pseudomonas, but everything, all inhalations, Ciprofloxacin and infusions have not changed anything. Possibly I have had it for decades. I am feeling like a “guinea pig” and I am really tired of it. I am 66 years old, and I am feeling relatively fine. At night, I need oxygen though. My question is: Can I just ignore the pseudomonas? I have been having it for sure for decades. Is it still even possible to eradicate it? Thank you in advance for your time. Lilac
15.09.2015
Respiratory signs
Hello, My one year old CF baby has important digestive symptoms but no respiratory signs, even having had nasopharyngitis, I have not seen significant differences compared to another baby. Do you think the respiratory involvement will be limited or it will appear in the forthcoming years?
15.09.2015
Advice for dwelling
Hello, I am seeking your valuable advice to help me find the dwelling place that would improve my health. I am CF, 4 years ago I left Paris and pollution to be closer to the oxygen say near the forest of Fontainebleau. Unfortunately I have not thought at all to the problems that home moisture could trigger that is a big disease aggravation in the fall (I started to perform pre lung transplantation assessment ...). Therefore, it is VITAL to leave this area and I am now ready to consider moving outside the Ile de France. So I am searching a sunny place, but not very hot in summer, less humid, very few polluted. It is very complex. I conducted various analyzes graphics on rainfall, temperature, terrain, streams ... but I would like your expert opinion. Should be avoided in my opinion two axes: one that includes the departments above the Loire, Normandy and Northern France (due to excessive moisture) and the second axis extending from the Alsace Lorraine Region of Lyon and Provence Alpes Côte d'Azur (large temperature differences being harmful, so no semi continental climate, polluted and too hot in summer areas). The area of Toulouse, Agen and south are too hot in summer for me too. The study of the rainfall is certainly important, but the humidity also depends on the winds, geology whether it is a land that drains water or not ... Following this rather long description, what do you advise? Thank you a lot of attention to this email, I am eager to hear your opinion
13.09.2015
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