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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- reproduction
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- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- cystic fibrosis and celiac disease
- Hello, I was diagnosed to have celiac disease, I have no particular symptoms and I would like to know the benefit / risk of a strict gluten diet in relation to CF? What are the risks of not permanently being absent from gluten?
- 06.06.2015
- Hyperinflation
- Dear expert team, This is my question: Which value of the lung function test indicates hyperinflation? Which are the standard values of a healthy person? Many greetings, T.
- 06.06.2015
- Danger of the wet places
- Hello, I don’t understand why the bathroom (siphons) represent a potential danger if a place such as an aquarium (to visit) is without danger while much wetter and hot. What is the difference between both? I am lost. Thank you for your answer
- 06.06.2015
- R1166C and 2142delT
- Hello, what is the clinical course of the illness with the above mentioned mutations? Are any new drugs for those mutations available?
- 06.06.2015
- Need to treat?
- Dear ladies and gentlemen, I have the following bacteria: - a great number of Pseudomonas putida (I have otherwise no Pseudomonas) - a great number of Haemophilus parainfluenza - Aspergillus fumigatus At the moment I cough more and I am very tired. My lung function is stable. How do you judge the treatment, should I wait or take an antibiotic? Many thanks and with best regards, L.
- 06.06.2015
- Cruise
- Hello, Can I take part with my 7-year-old CF-boy at a cruise without worries? Thank you
- 04.06.2015
- Delta F508 effective 2015
- Hello, my 12-year-old daughter suffers from the above mentioned mutation. I have heard, that there is a drug available in the course of this year. Is it true and how does it act? Thank you
- 04.06.2015
- Enzymes
- Hello, I am an adult CF patient. The lung problems have always been not too severe, but I have always had problems with digestion, that manifest in an always severely distended abdomen. Now I have, since the beginning of the year, just left out the enzyme substitution completely (before about 2000 IU/g fat) and the problems have disappeared. The weight is constant, rather increasing and the stool is normal. New is however a nightly sickness, that occurs mostly at the same time. Does anything speak against going on with leaving out of the Kreon? Many thanks in advance.
- 04.06.2015
- Induced sputum in baby (with additional comment)
- Dear expert team, my daughter (7 weeks old) has been diagnosed to suffer from CF because of a positive newborn screening. She has no symptoms until now. In the coming week, further diagnostic is done and the beginning of a therapy during a stay on the ward. I have been told, that every 4 weeks an induced sputum has to be gained for microbiological investigation. My question is: is it really necessary in such a young child to have this quite stressing investigation done every 4 weeks? Would greater time intervals respecitvely the performance of throat swabs lead to a worsening of the prognosis ? Thank you! V.S.
- 04.06.2015
- Disinfectants for little children
- Dear expert team, my son (14 months old, CF) starts to find it's feet and is in the investigator's phase. Because of this, he is taking everything in his hands and unfortunately also in his mouth. As we are often in the forest, I am looking for a hand disinfectant, that can already be used in little children, in case one cannot wash the hands. Most of the available preparations are only licensed for children older than 3 years. While doing my research, I found a preparation that contains only water and hypochloric acid (HCIO, containing chlorine 10-30PPM) and should kill 99,9% of all bacteria without application time. It is said to be used even for baby hands, suckers and bottles. Unfortunately I am not a chemist and have not any knowledge of those things, that is why I am a bit sceptical. That chlorine kills germs, seems clear to me, as it is yet also used in swimming-pools, but what about hypochloric acid? Is that really acting and is it indeed not harmful? Would you, if necessary, have an alternative for me, that can already be used in little children, who have constantly their hands in their mouth? I would be happy to get your advice! Bedst regards, L.B.
- 04.06.2015
