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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- reproduction
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- swine flu_novel influenza
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Topics
- Water from the Rhone River
- Hello as a mother of a little CF boy with cystic fibrosis and in anticipation of the beautiful days, I'd like to have your opinion. This summer at the grandparents of my son, the swimming-pool (so contact with body and possibly mouth), a small shower before swimming, but also a small sink in a kitchen (washing hands and dishes, cooked meals outside) are fed by water from the lower Rhone River. Is there a risk for my child? Thank you!
- 25.03.2015
- wet clothes
- Hello, I’d like to know if it is not advisable to hang out my damp clothes in my house with a CF child? (I am thinking in particular of moisture risks). Thank you for your answer.
- 25.03.2015
- Chest strap
- Hello I would like to know where to buy a chest strap for the chest physiotherapy of my young boy. Thank you.
- 25.03.2015
- Cystic Fibrosis
- What are the new therapeutic perspectives?
- 13.03.2015
- clinical trial
- Hello Is there any clinical trial regarding patients with mutation G542X/Delta F508 ? Thank you
- 13.03.2015
- My son: a 3 months-old CF baby
- Hello, My son born in September 2014 was detected to have cystic fibrosis in October 2014. Since then, our lives are turned upside down .... A lot of stress and fear for the future of our child. We got the results of mutations in December. Since I’m crying a lot... Can you give me some explanation about p.Phe508del mutation (F508del) and c.2039delC (2171delC) mutation class 1 ? Will there be a treatment with these two mutations??? Will we have one day a gene therapy? If someone has mutations Class 1 and Class 2 can you reassure me about his health? THANKS IN ADVANCE.
- 13.03.2015
- Explanations about mutations
- Hello My son, born in mid-November 2014, was diagnosed via Gutrie test perforemd at birth. On the eve of his first month we learned about his illness, and performed a sweat test giving 103mmol / L. Everything is new and I do not fully understand the mutation he has got. Indicated two mutations G542X / C3140-26A>G. Can you tell me to which classes these changes belong and what we know (prediction of pancreatic sufficiency eg) about them? Thank you very much
- 13.03.2015
- Pyo
- What does Pyo mean?
- 13.03.2015
- Ivacaftor and Lumacaftor combination
- Hello, Could you tell me if this combination (Ivacaftor/Lumacaftor) has a marketing authorization and whether it is already prescribed by the CF Centers for delF508 mutations? Thank you,
- 13.03.2015
- Achromobacter
- Hello, The last sputum examination for my son showed a low colonization of Achromobacter. He had an intravenous treatment but that did not work. I would like to know if you have information on the consequences of this germ to the lungs but also whether it will worsen faster his health. Thank you in advance for your response.
- 13.03.2015
