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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
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- asthma
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- covid-19
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- modulator therapy
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- Epigenetic
- Hello I have heard about the epigenetic, which is presented by INSERM as one of the major scientific and medical challenges of our time. Could you tell more concerning the use of epigenetic for CF treatment? Thank you
- 30.01.2015
- Teething
- Hello, my CF son is 5 years and a half and is teething, 2 molars, he has regular fever spikes during the day to 39.5, he's not cold, but coughing a little in his fever spikes. I want to know if the fever is connected to teething and if I have to give him another thing than paracetamol. And what are the risks? Thank you in advance for your answer.
- 30.01.2015
- Chest physiotherapy with straps for Cystic fibrosis
- Hello, I'm a physiotherapist and I currently care for 2 CF patients. I want to know if someone has experience with (or written documentation on) chest physiotherapy using straps. I can't find anything about it. Thank you in advance!
- 24.01.2015
- Composter
- Thank you for your previous answer. However, I would like to know if the worms themselves are problematic. Compost is not very good for him, but what about worms?
- 24.01.2015
- Cheese and cystic fibrosis
- Hello I had a compost and the doctor advised me to abandone it because of the risk of aspergillus. Therefore, I wonder if I can eat cheese like Roquefort with mould: Penicillium roqueforti. In advance thank you for your response, Best Regards,
- 24.01.2015
- hydro alcoholic solution
- I think that a hydro-alcoholic solution of 75 ml is effective for one month after opening, but what about the bottles with pumps and higher capacity? Thank you for your help
- 24.01.2015
- White vinegar
- Hello, I use white vinegar at home because we have a septic tank therefore so little bleach, but I realized that white vinegar I use is crystal vinegar, I wonder if it is as effective as normal? Thank you in advance for your answer. Best Regards.
- 24.01.2015
- Lake and amusement park
- Hello I am a mother of a little CF girl wanting to go to a famous amusement park in Marne La Vallée (Disneyland). I would like to know if it was really dangerous or possible with rules of hygiene. In addition, most of the hotels are located near a lake: there is any risk of contamination with P. aeruginosa? Thank you in advance for your reply.
- 24.01.2015
- Diagnosis respectively exclusion of CF at adult age
- Dear ladies and gentlemen, I suffer since 2 years without cessation from strong cough with sputum (I am non-smoker), burning and tightness in the throat, hoarseness, cramps in the thoracic cage, back pain, a feeling of pressure in the upper abdominal tract, frequent diarrhea. The cough starts in the mornings, about 10 minutes after getting up. Altogether I cough in the course of the day about 3-4(!) hours, sometimes even more, with cough-free intervals inbetween. At night I am mostly free of coughing. To the diagnostics so far (I try to make it short): 2 gastroscopies, 2 thorax x-rays of the lung, 2 CT scans of the lung, allergy test, investigations of blood, 2 bronchoscopies, CT scan of the sinuses, presentation at the rheumatologist (all blood values in the normal range except for an increased ANA value, the lower values within the normal range), MRI of the cervical spine and the thoracial spine, ultrasound of the thyroid gland, lung function test, standard blood values - all that within the past 2 years and everything in the normal range. An underlying reflux/silent reflux as cause of the cough could be excluded by a 24-hours pH measurement/ impendance. Furthermore, a probatoric therapy with a blocker of the gastric acid did not bring improvement. I should undergo (according to my own wish) a sweat test, in order to diagnose respectively exclude CF as a possible cause for the permanent cough with sputum. As I am already 46 years old and have suffered only from recurrent and strong rhinitis in my former life (before the permanent cough) so far, in case of a positive result it would be, according to my understanding, an atypical form of CF. Now to my question: Which kind of diganostics would make sense in my case? Would a sweat test be more sensible or a genetic investigation or probably a measurement per Ussing-chamber? Many thanks for your efforts and best regards,
- 24.01.2015
- Mucolytics yes or no?
- Dear expert team, I have mucus in the upper airways that bubbles however cannot be coughed up well, are CF patients allowed to take mucolytics and if yes, which ones can be recommended? Many thanks
- 21.01.2015
