User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Is (herpes) zoster contagious?
- Hello expert team, I am suffering from CF and my brother has shingles (herpes zoster) at the moment. Do I have to fear that it is contagious? Many thanks.
- 10.12.2014
- Stenotrophomonas maltophilia
- Hello, We learned one month after birth that our 4 months-old daughter was diagnosed with CF. She carries the DF508 and G3272-26A mutations. She is followed up every month at the CF Center X, has respiratory physiotherapy every day and is currently pancreatic sufficient. My question is, we just learned that she has already Staphylococcus aureus. She was then put under Augmentin for 15 days + physiotherapy twice a day. In the last sputum culture, they have become "rare "but there are traces of Stenotrophomonas maltothilia quantity" rare "also. What’s this bacterium? We were told that it was a bit like Pseudomonas, however, we are taking all precautions regarding stagnant water etc ... The pulmonologist has been very evasive about this bacteria ... How does it work. She will have it for life? Is it serious? I saw that it was resistant to antibiotics ... She has no particular symptoms for the moment ... We are a bit helpless ... Thank you
- 03.12.2014
- ironing
- I'd like to know if there is an contra-indication to iron with steam for a child with cystic fibrosis? Thank you
- 03.12.2014
- Carpet and picking mushrooms in the forest
- Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
- 03.12.2014
- Mycobacteria
- Hello, My 6 year old son just had a sputum culture that shows the presence of mycobacteria. I wished to have more information on this germ and whether my son will have this germ all the life as I gather that it is resistant to antibiotics. Also I'd like to know where is the research regarding its mutations G542X and 1811 + 1.6kba> G Thank you in advance for your response.
- 03.12.2014
- L227R mutation
- Hello, From a strict physiological point of view, what is the impact of the substitution of Leucine at position 227 to Arginine? Can the different physicochemical properties of those aminoacids explain the dysfunction of the CFTR protein? There is very little documentation about it. Could you enlighten me?
- 03.12.2014
- Dimension of premises
- Hello, I have to outline plans for premises of a CF Center. I will use the existing premises. I need to know if there are standards to meet especially for CF premises or if it can be similar to usual consulting rooms: - Consultation room - Physiotherapy room - Multipurpose room (meeting room) - Nursing Office - Reception and waiting room Thank you for your help
- 03.12.2014
- c.4251delA
- Hello, I previously posted a message to know the impact of the 4472delT mutation. Actually I got confused because my son is a carrier of this mutation on the SAMD gene, not on the CFTR gene for that he is c.4251delA homozygous. Please remove my previous question please. What would the impact of this mutation?
- 03.12.2014
- Borderline values for CF
- We had a baby boy two months ago in Thessaloniki and the baby was tested for metabolic diseases (blood from the heel on a paper). Two days ago the clinic called for a retest for metabolic diseases. Our doctor said it was nothing to worry about because the value was 62 instead of 60 and it 99.9% we should not worry about CF. What do you think?
- 03.12.2014
- Mucoclear® (hypertonic saline)
- Hello, Is RhDNase (Pulmozyme®) more efficient than hypertonic saline (Mucoclear®) ? I have observed that nebulization of hypertonic saline induced more sputum in my son. It’s really efficient for him in term of fluidity. He feels well cleared. Tolerance is excellent. Therefore the physiotherapist of the CF centre said that a maximum of 3 nebulizations per week would be enough because of a possible irritation. I don’t understand why this treatment has to be limited as tolerance is excellent in my son and benefice is evident ?
- 03.12.2014
