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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Henhouse
- Hello, our neighbors would want to make a henhouse behind our home: It will be neither close to the house, nor close to our ground. I don’t know how much hens there will be, there will be no straw. They asked us if it was dangerous for our CF little boy even if he does not approach it, at the level of germs and feathers? Thank you in advance for your answer
- 04.11.2014
- Nebulization in an infant
- Hello, I have a 7-month-old infant with CF. I would like to know if I can start hypertonic saline nebulizations to prevent the dehydratation of its mucus, of course with respect to the device disinfection rules. Do you think that it could be efficient to delay pulmonary infections?
- 04.11.2014
- Swimming pool
- I have a question about the warmth of pool water. I'm not allowed to go to Center Parks because the water is too hot. In Knokke-Heist a new swimming pool has opened. The water in the pool is 30° C. Is it healthy to swim in the pool or should I stay out of it?
- 04.11.2014
- Desire to have children
- Dear Sir, dear Madam, I am an 18-year-old woman. My boyfriend is almost 18 and has CF. He takes medication but has little to no complaints. We are professionally and financially both doing well and we would like to have a baby. I have two questions: I know that the chance to get pregnant naturally is rather small, but is it totally unthinkable? Or are there cases known where couples get pregnant naturally even when the man has CF? And also, sorry for bothering you with another question, from what age can you start with an IVF treatment? When my boyfriend is 18 soon, and we are both above 18, can we start IVF, then? Thank you very much in advance for you answer.
- 04.11.2014
- CF test for only one parent
- Hello, I would like to know the impact on my 5-year and 6-months-old daughter’s health who was F508del homozygous diagnosed in 2011. Regarding that only her mother has made genetic testing (her father did not wish to do), could you give me some information about it and whether it will affect future treatment following the research? Thank you for answering. Regards.
- 04.11.2014
- Pandoraea sputorum
- Hello, A little time ago, the sputum culture that was made during a quarterly visit revealed that my 13-year-old son was carrying the Pandoraea sputorum. A cure has been quickly programmed. Can you tell me what are the places that bear a risk of contamination with the germ? Thank you for your answer.
- 04.11.2014
- Willebrand disease and CF prenatal diagnosis
- Hello, my partner is a carrier of a CF gene mutation, so we made an test for me and I am unfortunately also carrier of the gene. We were explained the risk is 1/4 chance of having a child with CF and the possibility of diagnosis at 11 weeks of pregnancy. The problem is I have got also Willebrand disease at no higher rate. Is it consistent with this diagnosis at 11 weeks ?
- 03.11.2014
- Follow-up on question_sweat test
- In following up on my last question (33 week-old preterm baby) I would like to let you know that the first IRT value at birth was 30 with 117 maximum value and 13 days later 52 with 90 to be the limit. We do have an older child at home (3 years old), but it does not attend a kindergarten, but he had a cold at some point recently. The pediatrician thinks that CF in very unlikely, but because the illness was rather long she would like us to do the sweat test. The baby’s stool in normal and its sweat is not salty. I would like to stress that now when the weather is good, the baby is well and only has a permanent nose congestion. It has gained 500 gr in 28 days, something that has pleased the pediatrician. We are upset about the idea of the test.
- 03.11.2014
- G542X mutation
- I am 19 years old, have CF and carry the mutation G542X. I read and hear about a medication that will be commercially available the coming years for the radical cure of the disease. Is this medicine available to purchase? If not, do you know what state it is in?
- 03.11.2014
- Vaccination
- Can influenza and antipneumococcal vaccination be realized the same day in an adult patient?
- 03.11.2014
