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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
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- reproduction
- research
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- sport
- swine flu_novel influenza
- transplantation
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- ventilation
Topics
- Hygiene
- Hello is there a consensus showing that hygiene (particularly in relation to sponges, toilet, standing water in general) have reduced colonization with Pseudomonas aeruginosa? In other words, before, we didn't advise so many things regarding stagnant water. Were the patients earlier colonized? Are the precautions regarding stagnant waters really so effective? Thank you.
- 29.07.2014
- Gardening
- Can a person suffering from CF do gardening (contact with soil, grass) without too much risk? I've had several Pseudomonas and aspergillus infections. Thank you.
- 29.07.2014
- Garden hose
- Can we fill a small pool for a 2-year-old CF child with water from the garden hose? I feel that the hoses are real nests for bacteria, with stagnant water and are often in the sun. .... thank you
- 29.07.2014
- Beach
- We were told that our child could swim safely in the ocean but can he play in the sand at the beach? The beaches are often not very clean when we dig a little, the sand is humid and potentially contaminated with Pseudomonas aeruginosa? What is your opinion? Thank you
- 29.07.2014
- Limestone in faucet
- Is the limestone in faucet or bathtubs dangerous for CF children ? Thank you
- 29.07.2014
- Finding of staphylococcus aureus at adult age
- Hello, I (female, 28 years old, chronic colonization with Pseudomonas aeruginosa since early childhood) have had for the first time the finding of Staphylococcus aures in the last sputum. Apart from penecillin, there are seemingly no resistances. My health condition is actually quite good, I was able improve my FEV1 from 24% in the year 2011 to 34% FEV1 and with this also reduce my need of additional oxygen via a strong therapeutic regimen (azithromycin orally and aztreonam + colistin inhalative as permanent antibiotic therapy, every 6-8 weeks i.v. with changing antibiotics). My physical capacity is as good as it has not been for years. Should one now react to the new finding or rather wait and see? Many thanks!
- 29.07.2014
- Sweating
- Hello, our one-year-old son with CF is sweating for several weeks very strongly at the head, even if he is not too warmly dressed and it is not warm. Especially at night and when inhaling. His hair is often completely sweated wetly. Shall we get this investigated (and if yes, how?) or is it normal for CF patients to sweat very strongly? Many thanks!
- 29.07.2014
- Baby wipes
- Hello, my daughter suffers since birth from CF, after 7 weeks Pseudomonas has been detected and treated. My question is, if there is a danger that Pseudomonas can stay in baby wipes?
- 29.07.2014
- Sweat test
- If the sweat test is negative, does it means that I am a cystic fibrosis carrier?
- 29.07.2014
- G542X
- G542X heterozygous mutation and polymorphisms 7T and 9T from a villous biopsy- does this mean a healthy carrier status? (Given that I have a child with the mutations G542X and deltaF508 heterozygous)
- 29.07.2014
