Topics

Dosage of Kreon and side effects
My daughter is 5 years old and suffers from CF. She takes 2500 IU of Kreon per gram fat. We have the impression, that it has become insufficient. She has always a bloated belly, complains lately regularly about abdominal pain. She has fatty stools rarely, however sometimes up to 5 times a day. We give even more Kreon if she eats very fatty food. Our CF center is of the opinion, that this was already a very high dosage. At the moment we are on rehabilitiation and there it has been said, that we should give more, as it would be excreted and would not cause any side effects. Our gastro-enterologist says, that a permanent overdosage could lead to thickening of the abdominal wall, what should we do? Our daughter has had a meconium ileus after birth, therefore I do not want to cause any problems in this direction. She is on the 90th percentile with her height, weight on the 40th. I think this is with a BMI of 25 o.k. concerning the weight. Are there any side effects in the long runs if one gives clearly more, or does it not cause any problems? Thank you very much, Best regards, V.M.
30.06.2014
Renal insufficiency stadium II
Partly increased creatinin values in the blood (85/94/96/100), measurement of the glomerular filtration rate according to the MDRD formula (67ml/min/body surface on the 9th december 2013, on the 24th february 2014 - 62.7) at a control done by the general practitioner. These values fluctuate and were already at 54. After this, a scintigraphy of the kideneys was done in September 2012. Result: normal total clearance on the left side, right kidney with lighter functional impairment. An appointment at a kidney specialist revealed: Result: chronic insufficiency of the kidneys stadium II, nephrosclerosis, chronic interstitial changes on both sides, sclerosis of the aorta. The physician said, that the result does not upset, as the scinitgraphy would be all right. Follow-up visit in one year. I am a CF Patient (over 45 years of age) and take azithromycin 250mg every second day over the whole year, I inhalte with colistin, rh-DNAse. In case of acute infections i.v., as at the moment. Now I am a bit worried, as very different statements exist. However, one cannot disrupt anything of the therapies. Coud probably azithromycin change the creatinin values this way? Can one do anything about it, in order that these values are not going to worsen? Many thanks, S.
30.06.2014
Painting
Hello, we paint in our house with water based paints. Is there a risk for our son 5 years of age with cystic fibrosis ? Thank you for your answer
24.06.2014
Visit of a farm
Hello, my son has a one-day outing in a farm with his college. His professor of biology informed me that the chlidren will spend all the day inside the farm, in the middle of the various animals, with a picnic next to them, cow milking etc. Thus my son would remain locked and not be outdoors, but he really wants to participate in. What precautions can he take to minimize the risk of contamination in particular with aspergillus, the pyo, staph etc. Is the complete mask enough? Or is it necessary to formally forbid to him this activity? Thank you for your answer
24.06.2014
Risk concerning a person with chronic bronchitis
Hello, I want to know what is the risk to encounter a person with chronic bronchitis and who is under oxygen in the hall of the building every day. Is there a risk of transmission of germs?
24.06.2014
Playdough
Hello, Can a CF child of 20 months use playdough if he respects conventional hygiene instructions? Is there a particular indication against? Thank you in advance.
24.06.2014
Persistent cough
My son is 6 years old. He was examined by Dr. Doudounakis about a year ago, as he had repeating episodes of productive cough and because his sweat seemed very salty to me. We did a sweat test and the result was 26. Last winter we had some episodes of moderate cough. For three weeks no he has a different, rough and usually productive cough nearly every hour day and night. He sneezed once and he secreted an especially sticky and thick mucus. I am starting to fear about the possibility of CF again. What can I do? Should I see a pediatric pneumologist? Should I repeat the sweat test? His growth is beneath average but within the normal curves. He has a mild constipation but otherwise he is alright. The oxygen in the blood is 99%. He is always active and exercises normally. He sweats excessively during the day and during sleep.
24.06.2014
Insectarium and Aquarium
Hello, Can CF children go in an insectarium and aquarium in zoos? Thank you
24.06.2014
The qestion about MRSA to Dr Deirdre Gilpin
The qestion about MRSA to Dr Deirdre Gilpin As i read MRSA doesnt trasmit throu air- it only hapen when person has lung disaes MRSA is usually not spread through the air like the common cold or flu virus, unless a person has MRSA pneumonia and is coughing http://www.webmd.com/skin-problems-and-treatments/tc/methicillin-resistant-staphylococcus-aureus-mrsa-overview So it means that i can not get MRSA from air As was writen here !! In this case doctor metined - when you have MRSA lung disease - it could be spread throgh air !! YES ?? It is possible for people who have MRSA (CF or non-CF) to pass it to household contacts or to people with whom they have close contact- even pets!- and recent studies have suggested that MRSA can be spread from the respiratory tract by coughing, sneezing and kissing. Partners of people with MRSA are at increased risk of transmission, probably because of increased bodily contact1. However, unless those contacts have a medical condition, its not likely that they would develop an infection but there is a chance that they become colonized with MRSA. This colonization may well be short-lived, but might be long enough to pass it back to the person with CF- this is particularly a problem if the person with CF is undergoing decolonization (i.e. a course of antibiotics designed to get rid of the MRSA). In order to avoid a cycle of colonization being established, it would be important to consider some important, but simple, infection control measures2. Regular showering using a medicated wash, containing chlorhexidine and handwashing, particularly after coughing or sneezing, by all household contacts may reduce the risk of colonization- alcohol based hand rubs may be particularly useful in this case. In addition, regular changing of bed linen and bed clothes may cut down the risk of MRSA spread.
24.06.2014
Need for help(assistant) for a diagnosis on a 15-year-old child
Question hello, me you already have to put 2 questions for my 14-year-old son but not received of msg from you!! In other has this day the paediatrician who take care of him vien with leaving in another hospital then about one d other is going to take care of him all what j knew before his(her,its) depart c is that by telephone she(it) my said that aparament he(it) and negative for the muco he(it) wait for the confirmation by mail of the next day on the other hand she(it) not said that he(it) had a pancreatic insufissance and a quil go cross(spend) d other examinations but has this day not d other answers has all my questions I am lost!!!! Not way(means) to join(contact) the new paediatrician!! Aparament she(it) na not still acquainted with its file(case)!! Even by e-mail no answer!! Can you tell me is what conssaiquence d an insufissance
24.06.2014
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