Topics

Nuvaring® and levofloxacin
Are there any interactions between Nuvaring® (vaginal ring releasing hormons for contraception) and levofloxacin 500? I took it for 7 days. I have started last week on wednesday and stopped yesterday. I have taken the ring our last saturday and will put it in again on the coming saturday. Is this still secure?
07.10.2016
Dyspnea in spite of good values
Hello, I am 28 years old and suffer from CF. At the moment I am mostly doing quite fine, can do sports and the FEV1 is about 70%. In spite of the good FEV1 value I have partly severe problems, if I do not cough up for a longer time. This is true mainly in the mornings, as I do not have to cough during the night fortunately, and it turns worse, when I have slept longer. During the week I seem to get up early enough, however at the weekend I sleep longer and weak up often with extreme dyspnea, so that I partly lay on the sofa for 1-3 hours bending the body forward and try to breathe properly. Salbutamol and ipratropium bromide do not help at all, independently how often I use them; only fluticason plus salmeterol helps a bit, however it takes the 1-3 hours, that are really not agreable, until I feel that it is going better. In the CF center, diverse blood values concerning allergy have been tested without success, in the sputum there was nothing, either, which is normally not common for me. Only the MEF 25 value is with 13% and the residual volume with 230% not so good. The CF center is unfortunately not doing anything against the dyspnea or is trying to find the reason. As I do not know what to do, I increased the dosage of fluticason on my own. This brings a bit of relief, however I do not know if this is a long-term solution. The last possibility would be, that I wake me up at night and do my inhalation, in order not to have dyspnea in the mornings, however by this quality of life is not really increasing. Do you have an idea, where such dyspnea could come from and what could be done about it? Many thanks and best regards,
28.09.2016
Sputum result, additional question
Thank you first of all for answering my question. Unfortunately the second and third part has not been answered. What does it mean if Penecillium sp. could be found in the sputum, however no finding of fungi is documented? Is my body now producing penicillium?
28.09.2016
Side effects of Quinsair® (levofloxacin)
Hello, I (CF patient) have had very unpleasant side effects when using levofloxacin orally. Because of the recommendation of my physician I took it in spite of this for several days, with the result, that the moderate side effects turned to be very strong when taking it again (the foot was massively swollen, beating and hot, strong pain. Another injury is not coming into question). After contacting my CF center, the antibiotic was stopped immediately, the side effects were slowly reversible, walking without pain however, was only after 5 weeks possible. Only after this I read, that the manufacturer had to publish a red-hand letter, due to massive damage of tendons, that are supposed to be caused by the drug. Now the physician is recommending that I should inhale the same substance; at the moment I inhale Colistin (I have MRSA and am free of Pseudomonas), however I do not feel well with the recommended change to the substance (due to the mentioned experience) and I do not trust the statement of the physician that it would not be harmful. In the end she was wrong with that once before. How do you judge the side effects of inhalation compared to oral intake? Can inhalation be recommended without doubts even if the oral intake was causing side effects? Thank you
28.09.2016
Hygiene rules for dogs in rental apartments
Hello, I am a 22-year-old CF patient and I am thinking about having a dog together with my boyfriend after my studies. I know, that I will not always be able to care for it due to my illness. My boyfriend would then take care completely of the dog in such times. However I am worried if hygiene in the household would suffer due to the pet and if this would be a health risk. I read in a paper from the Robert-Koch institute (German official hygiene authority), that one should wash the hands after any contact to animals, even also in case of own pets. I think this is utopian, especially as in the future planned children would not follow these rules. Which guidelines do exist for a CF patient keeping a dog? Is it advisable to let the pet only in certain rooms (which therefore does speak only for a little dog)? In case of choosing a dog breed, it is taken for granted that a dog with short hair is favorable. Is there a great risk to have cross-infections of problematic germs between the dog and the CF patient? Or how great is the risk that my future pet will aquire MRSA or similar germs from the veterinarian office? Many thanks, D.
23.09.2016
No segregation for Pseudomonas in hospital?
Hello, a friend of mine is at the moment in a large German University hospital (with its own CF center) due to an i.v. therapy. Unfortunately, he is sharing the room - even though he is private patient - with 3 other lung patients. One of those is colonized with Pseudomonas. My friend is at the moment free of Pseudomonas and has now extreme worries to get again Pseudomonas there in the hospital. The physician in charge said, that would not be dangerous. In spite of this, in the CF center and also at the physiotherapy, Pseudomonas patients are segregated from the others. How should he react now and what should he do?
23.09.2016
Lactoferrin
Hello, are there treatments or research regarding the use of lactoferrin as a bactericidal substance in cystic fibrosis?
19.09.2016
concert
Hello Our CF son is 7 1/2 years old. I would like to know if he could go to a concert: his sister will celebrate her 10th birthday, and for this occasion we wish to offer a concert visit to our children, but we are concerned that there will be too many people, the weather and the date (January so more sick people). Thank you in advance for your answer.
19.09.2016
Research Update
Hello, Could we have a French synopsis on positive results regarding research (Vertex, QR-010, PTC124, others?) for patient heterozygous for the F508del mutation? Thank you.
19.09.2016
Shortness of breath
Hello, my son (20) has had an infection 3 weeks ago and since then, he has shortness of breath when climbing the stairs etc. 2 weeks before, he had been to the regular check-up and everything was ok. Of course he had then made an acute appointment in his CF center. Nothing could be found when he presented there. Blood values were ok, sputum also – no germs, also auscultation of the lung did not show anything. He should not have shortness of breath normally, as everything is o.k. He is inhaling ipratropiumbromide and hypertonic saline 6% at the moment. The next check-up will be in August. We do not know what to do, as the shortness of breath is making his work hard (motor vehicle mechatronics). I would be very happy about advice. Best regards, T.
12.09.2016
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