Topics

Pseudomonas
Hi, I am 25 years old and have very severe asthma which is but difficult to be hold at bay with all drugs available (Symbicort, Singulair, Decortin 7,5mg, Sultanol forte for Pari boy...) I permanently have infections and I had three bouts of pneumonia within a bit more of one year. Now an examination of the sputum showed that I have Pseudomonas within my bronchus. Kann this occur whith asthma also? How does such a colonisation with Pseudomonas happen? Many tests are being done at the moment. Is it possible that a person has asthma and cystic fibrosis at the same time? But in my age (I always had problems with my lung, but always asthma)? Is it possible that pseudomonas causes the frequent bouts of pneumonia? Also my lung function keeps being restricted. Greetings,
22.12.2008
Indication of ursodeoxycholic acid
Dear team, Is ursodeoxycholic acid prescribed in CF even if the liver value SGGT is always very good (9), while other liver values are slightly higher than usual since months? SGOT 41 (-35 norm), SGPT 48 (-45 norm), ALKP 140 (53 – 128 norm according to laboratory). Apart from that my liver is without pathological findings and disturbances. Many thanks in advance S. Gayer
22.12.2008
Information
In a family with a CF child that we are involved with as care givers, there are 4 cats and the parents are smokers. They claim this doesn’t matter. What’s your advice about this.
08.12.2008
Headache after cortisone therapy
Dear Expert Team, for some time now, I have been noticing that, after cortisone therapy, I get a headache that lasts for weeks. It usually goes away after about for weeks, but it is unbearable without pain killers. The initial dosage is usually 20 mg and the headache slowly starts at 10 mg and becomes really intense after the therapy. Could it perhaps be potassium deficiency? Also, I am always very shaky along with the headache. Therefore, last time a head CT was performed, but nothing was found. I hope you can help me or can give me some advice! Kind regards, a 34-year-old CF patient
08.12.2008
Children with special educational needs
Is a child with cystic fibrosis classified as a child with special educational needs and does this affect guidelines for integration into nursery schools?
06.12.2008
Pancreatine administration
What are the exact effects of a) an over-dosage of pancreatic enzymes b) an under-supply of pancreatic enzymes?
04.12.2008
Inhalor and flutter cleaning
What is the best way of desinfication and cleaning of a inhalor and flutter?
04.12.2008
Sailing and cystic fibrosis
Which experiences exist concerning the hygiene of water reservoirs on boats during sailing trips and is there a potential Pseudomonas problem? If so, what precautions can be taken? Should my daughter participate or not?
04.12.2008
joint problems
My 13 year old daughter has CF and since 3 years now can’t stretch her fingers. Her joints are swollen and she has difficulty stretching her arms. Apart from not being able to stretch the fingers they function well. She has been free of severe lung infection for the last few years, but takes amoxicillin as maintenance antibiotic. Can these joint problems be related to CF ?
04.12.2008
Pseudomonas (1st question)
We have a patient in our clinic with Pseudomonas bacteria which are difficult to treat. Currently we rinse everything which gets in contact with the mouth, for example the toothbrush of the Güdeltubus (is being washed twice a day, in-between rinsed only), cottonwool sticks for the oral hygiene, medical drugs which are dissolved etc. with Bismark water Is that necessary or could we use tab water as well? Does a clinic bear an increased risk that the tab water is contaminated? Is it possible to administer the patient humid artificial ventilation or should we rather use HNE filter (which is what we are currently doing). (Humid ventilation surely would be better for his secretion, wouldn’t it?) Thank you very much.
03.12.2008
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