Topics

MRSA
Dear Expert team, Concerning the employment of a babysitter who had close contact seven years ago with a person, infected with MRSA, we are uncertain whether 1. the risk of transmission of MRSA from the babysitter to my CF child is justified 2. Whether MRSA is easily identified and who could do it and how much does it costs. Many thanks for the answer and greetings.
13.11.2008
Pets
A simple question but I haven’t found an answer anywhere. We have three cats, these cats also go outside. What is the opinion about a CF baby (eight weeks old) and pets.
13.11.2008
nasal polyps
What about nose polyps and CF?? My 8 year old son has nasal polyps. He had surgery 3 times but these polyps grow back every time
13.11.2008
Preschool (Kindergarten)
What do I have to take into account as the leader of a preschool (Kindergarten) when I am planning to host a child suffering from CF in my instituion?
13.11.2008
Therapy
I've got a few questions: My daughter is 12 years old, diagnosed with CF at 4 months of age. She's got isolated from sputum bacteria P. aeruginosa for 2 years and a half. Since then she's been ill more often and was treated by IV antibiotics (5 hospital stays from June 2007 till June 2008 In between the hospitalizations she was on oral antibiotics also), to clear the lungs infection. A month ago they found in spitum the bacteria - Acinetobacter. Is it good to try therapy by Colistin inhalatory antibiotic? What is the standard protocol for it? What is the treatment protocol with both inhalatory antibiotics - Colistin and и Tobi 300mg/5ml (tobramycin)? Is it better to take them both? Or shall we switch between them and in what time with what pause? What follow-up tests must be run to see the effect? We haven't tried yet none of these two antibiotics. Thank you! Wish you health and luck! Svetlana Atanasova - Bulgarian email: atanasova.1972@abv.bg ; SKYPE: kreizi1972
10.11.2008
Blood Cough (haemoptysis)
How often is the case that a CF patient dies of blood cough? For how serious it has to be taken if one has only 1-2 tablespoons of blood cough per month? Does one have to list oneself because of this even when the other results are still within the scope (FEV1 up to 40%, 02 97%)? Many thanks.
10.11.2008
Mycobacterium abscessus
Can patients with Mycobacterium abscessus colonisation be transplanted ?
10.11.2008
camper van
Hello, we have just bought a camper van and are planning to travel with our two kids, which both have CF disease, during summer holiday. Are there any concerns/recommendations we should think about ?
10.11.2008
Lung-transplantation centers
Dear ladies and gentlemen, as in the near future I will have to reconcile with the idea of a lung transplantation (LTx), the question of "where?" is coming up. On the one hand one aspect is being near ones home, on the other hand the expectations on a life as long as possible afterwards are of course of greater importance. Hannover (Germany) for example, points out again and again a delightful 10-year-survining-rate of around 50% for double lung tranplantation (DLTx), which is more the 5-year-surviving-rate in other centers and in the ISHLT-register. On the other hand, the selection of patients is different from center to center. I just have communicated with a woman, who had been graded in Munich to be too good for a LTx, while in Hannover, however, she has been listed right away HU (high urgency?) due to frequent exacerbations. Can you assume in Germany, that in case of a similar health status before LTx the chances at different centers are similar, or is the treatment, respectively the success critically different? Yours sincerely and thank you for the answer,
10.11.2008
Costs of Drugs in connection with adult patients (Germany)?
Please notify that the question/answer is made for a German patient asking about the German medical system!: My foster daughter has CF and just became 18. Now a pharmacist tells me that health insurance companies do not pay any longer for drugs like Vitamin E and Ambroxol (Ambrohexal) mucus solvent. Is that correct indeed? If yes, is there any possibility to take action against that decision? She has no income of her own at all and will never be able to pay herself for the mucus solvents which are vitally important for her.
10.11.2008
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