Topics

IV at home
Dear expert team, I hope you can help me. My son needs an IV therapy now and would like/should do it at home because there are rarely beds for CF patients in the hospital in charge. Is there a company in the Vienna [Austria] area offering such therapy? The Fresenius company does not offer it any more. Best regards, Gerda Schmit
15.02.2008
Amyloidosis in CF
Dear expert team, Do you know an expert who is well experienced in amyloidosis in Cystic Fibrosis? Especially the kidneys are severely affected by the amyloidosis. The FEV1 is approx. 35%. A chronic colonization with pseudomonas exists for many years. Age 45 years. Many thanks for your answer.
15.02.2008
Inhaler
Which new insights are there regarding the e-Flow Rapid what the remaining rest in the inhaler is concerned? Thank you M. Russy
15.02.2008
Heart transplanted CF patient and pregnancy
Hello, My fiancée and I are strongly engaged in thinking about starting a family. Since she has Cystic Fibrosis and furthermore was heart transplanted, we are very insecure if this is possible at all. She is 24 years old and the heart transplantation was done at the age of 14. Her general condition is very good. Is there a substitute for the immunosuppresives that she could take during the pregancy? Is a pregnancy under these circumstances (two problem areas) possible at all? Thank you very much for your efforts.
15.02.2008
side effects of Prednison
When a child does not have a 100 % confirmed diagnosis of aspergillosis, how long is it necessary to take the Prednison? I am afraid of side effects.
15.02.2008
Atypical CF
I would like to ask: Since September my daughter has had repeated stomach pain, throat pain and headaches, and the doctor has always said that she has some kind of viral infection but she always prescribes her only Stoptussin for the cough. She has an atypical form of CF. We inhale amiloride. I would like to ask if she has been sick for so long whether antibiotics should have been prescribed since September. She has only been in school for three weeks since September, and now she has to have tests in all subjects because she is always absent. Please give me advice what to do next.
28.01.2008
Fever attacks
Permanently reoccuring fever attacks of 39-40°C. They come and take 1-3 days and then go away slowly. What can that be? Age: 22 years old.
28.01.2008
Check-up at CF centre
Hello, could the visit at Prague CF centre be managed as 1 day hospitalization like in Brno or do we have to stay in hospital for longer time?
28.01.2008
Sweat test
Hello, I want to ask about my 9 month son. I think that he is producing a lot of mucus and his sweat is very salty. Should I ask for chloride sweat test? I have not realized any other CF symptoms. I want to ask more if my GP will do this test or do we have to visit a specialized place?
28.01.2008
Water supply
Hello, we would like to use our well for water supply. Is this water suitable for a CF individual? After a normal investigation in Sweden, we were told that it has drinking water quality. Thanks
28.01.2008
<<  317 | 318 | 319 | 320 | 321 | 322 | 323 | 324 | 325 | 326 | 327 | 328 | 329 | 330 >  >>