Topics

Atypical CF
I would like to ask: Since September my daughter has constantly been sick. She has an increased temperature, headaches, sore throat, stomach pain and frequent diarrhea. She has an atypical CF. Our pediatrician has said that she always has some virus and has prescribed her Stoptussin against the cough and nothing more. This has gone on since September. She has constant stomach pain and you can even feel a small bump on her belly. She had an appendix operation 6 months ago and still has not recovered. So I would like to ask for advice what I should do with her and when antibiotics should be prescribed for her if this is constantly repeating. Thanks for your advice.
23.04.2008
Dosing regime antibiotics, Differences Ceftazidim vs. Piperacillin/Tazobactam
My son has CF . For the past 32 years he was successfully treated by i.v. antibiotics on a yearly basis. During i.v. courses, his CF outpatient clinic prescribed ceftazidim (Fortum) every 8h and amikacin once per day. My questions: 1. Would it be adventageous if he could receive his antibiotics by continuous infusion therapy over 24h? 2. Given that his Pseudomonas aeruginosa is sensitive to both ceftazidim and piperacillin/tazobactam, which antibiotic agent should be preferred as combination partner with amikacin?
23.04.2008
Aerugen
Is the vaccine „Aerugen“ still available in Switzerland?
23.04.2008
Desire to have a child despite CF
Dear expert advice, Since more than a year my boyfriend and I concentrate on thinking about the topic "family planning". I do have CF, but being a competitive athlete I have a good lung function and also in other aspects I do not have any constraints. Nevertheless, I did not succeed in becoming pregnant yet. The visits at my CF out patient clinic and my gynecologist have not been satisfying due to missing knowledge in this field: The CF ambulance has a lack of insights and information about gynecological issues and my gynecologist does not know much about Cystic Fibrosis. Thus, my CF doctor was able to give me the green light for a pregnancy as far as my health is concerned (my boyfriend's genetic test was also negative) and my gynecologist could not diagnose any organic impairment (I have a regular menstruation cycle and everything is okay as well). But until now nobody was able to tell me which possibilities there are to increase the fertility of CF patients. My boyfriend currently undergoes a detailed check-up. Should everything be okay with him one can assume that my cervical mucus is impermeable to sperm. Is there a possibility to make it more fluid in order to raise the probability of becoming pregnant? The next possibility I know is insemination. But at which point of time should this be tried? Which form of insemination is most promising? Which costs have to be calculated and are they maybe covered by the health insurance? Under which circumstances? Many questions! I hope you can answer them and are looking forward to your message! Best regards, Sarah
23.04.2008
Small outpatient departments
We want to switch to a (small) outpatient department close to our place of residence. There, we have been told that the smaller outpatient departments would have to send their patients to a bigger outpatient department twice a year, so that it would be useless to switch. Is that true?
23.04.2008
Pregnant?
I am 32 years old now and I know that my husband would like to have a baby. Of course me, too! But I am a bit more sceptical and I am afraid that I am going to do harm to the baby during pregnancy as I am taking drugs since my fifth year of life: 8 mg prednisone 500 mg theophylline L-Thyroxin 100 (drug: levothyroxine) Viani forte 1-0-1 (drugs: salmeterole and fluticasone) Verapamil 1-1-1 Sultanol (drug: salbutamol) Atrovent (drug: ipratropiumbromide) DNCG (drug: chromoglycinacid) Aarane (drugs: chromoglycinacid and reproterole) However, I am suffering only of "asthma" but I have to inhale every day, too, and have to do physiotherapy in order to come loose the mucus. I am getting along well and my husband is supporting me all the time, but this sorrow he can't take away from me this time. Probably you can tell me if those drugs coud do harm to the baby??? Many thanks in advance,
23.04.2008
Kindergarten with CF/Pseudomonas
Hello, I have registered my daughter with CF for kindergarten. Now, the kindergarten possibly does not want to admit her because they cannot supervise the enzyme substitution and guarantee to avoide problematic germs (Pseudomonas). This is not only regarding the toilet but also the usage of watercolours, floating Play-Doh® [in German: Wasserknete], glue (that has to be mixed with water and is used for several days), wading pool, fountain and streamlet in the garden of the kindergarten. Does she really have to dispense with all this?????? What about the two toilets? They do have lids but the toilets are only separated by little dividers. Can it happen that the water "splashes over"???
23.04.2008
Sweat test result
Hello, today a sweat test has been performed to our 2 year-old son. The result has been 60 mmol/l sodium chloride. The hospital informed us about the following interpretation: 80= pathologic In all other publications however, other limits are mentioned: 60= pathologic What is correct? Is there no uniform classification? We are going to do another test, but with this different classifications it seems not even possible to get a more meaningful result..... Many thanks for your quick answer, Yours sincerely,
23.04.2008
vitamin k
I like to know what do you believe about taking vit k. Some doctors said to us not to take it, others to take it for osteoporosis. My daughter is 19 years old.
21.04.2008
eradication of MRSA
My daughter, 17 years-old, has been tested for the first time positive for MRSA, only in the sputum. It is planned to try to get rid of it now. How can this be achieved and how great are the chances of having quite a durable success? In case she will change over to an adult CF-center which provides special rooms for patients with problematic germs, how great is the risk of aquiring further germs (my daughter is free of pseudomonas and the MRSA has no effect on the clinical status?). Furthermore my daughter wants to know why she is being isolated while hospital staff is not even examined and if she has to fear up to now at any contact with others (in the freetime, school, work)- assumed the eradication is successfull - to get infected again. Right now there must also have been a source of the germ somewhere. How do other teenagers cope with the situation to be treated as a leper? Please give me an answer as soon as possible as I do not know how I can help my daughter. Concerning her health she is stable, in contrast to her psyche at the moment.
21.04.2008
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