Topics

Organoid usage in Switzerland
I want to know if it is possible in Switzerland to test new substances/drugs mutation-specifically with organoids (mini-gut of stem cells)! According to Hans Clevers biotechnology Hubrecht institute with that substances can be tested for seldom mutations. I mean study substances for CF patients Regards from Switzerland (CF patient, 40)
12.12.2017
Edible mould on salami
Often one can find on Italian or French salami a powdered coating with edible mould on the outer skin. Is this kind of mould dangerous for CF patients? Many thanks and best regards, S.O.
12.12.2017
Carrier or patient?
My son is 10 months old, weighs 8 kg and is 75 cm tall. He suffered from dehydration last summer and we were hospitilised. We discovered that he carries the del508 mutation. We did two sweat tests at Hippokation Hospital and both were negative (values 22 and 23). We were tested for 85% of CF mutations and another mutation was traced. We were asked to have an X-ray and an ultrasound. Is it possible for my son to suffer from CF, since both sweat tests were negative, or is he simply a carrier? His stool is well formed with a normal smell.
12.12.2017
Possibility for pregnancy
My spouse (male) has CF and carries the DF508 mutation. I am not a carrier, nor a CF patient. Is there a chance for pregrancy?
12.12.2017
Ecologic swimming pool
Is it safe to swim in an ecologic swimming pool concerning CF?
11.11.2017
MRSA and child
Hello, I am 38 years old and suffer from CF. At the beginning of december we expect with my wife our first child. Unfortunately, MRSA has been detected again and again in my throat, at the last investigation, it could not be found. I am a bit worried, therefore I would like to get your advice: what do I have to take into accout when having contact to the baby? Can I be in the delivery room during birth? How should the contact to the child be in the first weeks? What has to be especially taken into account? Many thanks in advace
11.11.2017
Delay for removal of polyps
I have 3-4 time a year sinusitis. My ENT specialist recommended to have the nasal polyps removed but he mentioned, that they will come back and therefore I should wait with the operation as long as possible. Right now, I am treated with steroid-containing nasal spray and if needed antibiotics for oral use. Now I read about the Pari Sinus device that reaches also the sinuses in contrast to the nasal spray. Would it be possible to achieve a reduction of the nasal polyps with a suitbale drug administerd by the Pari Sinus and therefore to have more time until an operation would be necessary?
23.10.2017
parameters lung function test
Thank you for telling me what the following parameters mean: Fvc Fev1 Fef75
23.10.2017
Amercian refrigerator
Is it safe to drink tap water from an Amercian refrigerator if you have CF?
12.10.2017
Airco
Can you please give information about airconditioning systems?
06.10.2017
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