Impossible to make her eat

Question

Hello,
the girl of my brother who is 1 year and 1 month has cystic fibrosis, diagnosed at one month of age, and since this time she follows the necessary treatment, but unfortunately for at least two months she refuses to eat . The doctors have performed all the necessary examinations, but they found nothing. I think it could be a psychological block, but doctors don’t want to hear about this. I ask you for help to find a possible solution, but also in order to help my brother and his little family. Currently the child is fed by a tube during the night, but as she refuses to eat they start to use tube at lunch, too.
Thank you for your advice
Regards
M.

Answer

Hello,
Feeding difficulties are common in young children with cystic fibrosis, and may be related to many factors. Concerning your niece, it is difficult to give individual advice without more information about her previous nutrition, recent events in her life, possible behaviors of opposition, pulmonary status, etc ... As you point out, some psychological factors may sometimes lead to anorexia. The psychologist of the CRCM can help to identify the factors involved, and guide the parents.
As a good nutritional status is essential for evolution, physicians have chosen for your niece a nutritional assistance through a tube, to maintain or restore a good weight. This tube feeding can sometimes help to decrease the familial tension, and restore a peaceful atmosphere around the meals.
Generally speaking, it is advisable to continue to propose four small meals a day, emphasizing the enjoyment and the "fun" aspect of the meals; the child can settle down with his parents and taste the familial meal. Snacking between the meals should be avoided, as well as too much sweets!
The doctor, the dietician and the psychologist of the CRCM will personalize the advice depending on the specific situation of your niece, and will guide the parents as well as possible.
Sincerely
Dr. Michele Gerardin

15.05.2013