Living in the United States of America

Question

Hello, I am 17 and I have Cystic Fibrosis. I wish in the near future to live in the United States of America but I do not know how this great country treats people with Cystic Fibrosis. Are there CF specialized centres?

Thank you in advance;-)

Answer

Hello,
U.S. is the country where there is the largest number of patients with cystic fibrosis identified in a register (nearly 30,000: see register : www.cff.org/LivingWithCF/QualityImprovement/PatientRegistryReport )
Treatments are performed in specialized centers called CF centers. The list of CF centers is available on the website of the Cystic Fibrosis Foundation: www.cff.org

Financial management of care is not as simple and easy as in France or in the European countries. So it depends in what context you'd go there: with your parents who have their own health insurance through their employer or private, within the framework of studies ...

In any case for such a great project, it is useful to be prepared well in advance.
You can also find travel information by reading this article : https://www.ecfs.eu/files/webfm/webfiles/File/documents/JCF%20Articles/JCF_619.pdf

Sincerely,
Dr Sophie Ravilly

10.02.2014