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Mild CF
- Question
- Hello
My daughter is 2 months old and had positive genetic testing (deltaF508 and 5T) but has a negative sweat test. She has just been diagnosed with cystic fibrosis borderline (moderate atypical).
I wish I could learn more by finding people in the same situation and especially about the changes for the future ...
Thank you in advance
- Answer
- Hello,
I refer you to the answer to the formally asked question:
ecorn-cf.eu/index.php?id=65&L=5&tx_expertadvice_pi1%5Bshowitem%5D=2693&tx_expertadvice_pi1%5Bsearch%5D=TG12%20T5
Also, if you want to meet the parents of children who were diagnosed as mild cystic fibrosis following newborn screening, I suggest you contact the association Vaincre la Mucoviscidose in order to contact people in this situation and who would agree to meet you.
Hop this answer can help.
Best wishes
Gilles RAULT, MD, Roscoff CF Center
- 18.04.2016
