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CF patient who doesn't want to have a treatment


I just want to know if there is a study for the follow-up of CF patients who don’t follow any treatment, even when proposed?

There is no study regarding evolution of patients who don’t follow any treatment. The CF French registry ( is a tool for patients’ follow-up and collects each year data regarding CF patients. These data are relative to the diagnosis, medical follow-up, treatment taken, respiratory function, infections, genetic mutations…….An annual report is published and reveals progress on the management of patients.

Best regards,
Anna Ronayette