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Please note: While some information will still be current in a year, other information may already be out of date in three months time. If you are in any doubt, please feel free to ask.
Relevant question for nurses
- Question
- As a nurse in training I need to ask ‘a relevant question about a 12-year old boy with CF. I find this a difficult task becaus I never really get in contact with children during my training. What is important to a nurse who is envolved in the care of a patient with CF?
- Answer
- Dear student,
Towards puberty we try to improve the ‘autonomy’ of the patient. Uptill that time the responsibiity about the treatment has been mainly with the parents but certainly from puberty this responsibility should more and more move towards the child. This means that the patient needs to learn more about his disease and the treatment and the patient needs to take steps in performing his therapy autonomously… of course still with some guidance and supervision from the part of the parents and care takers. The first step is to understand why this complexe treatment is needed and how it should be done: treatment such as aerosols, different medicines that the child has to take every day. Why do I need these check ups and why do I need to go to the hospital for IV antibiotic therapy. It is important that patients get honest answers to their questions, adapted to their age and their possibilities.
Many CF clinics have special programs that help CF youngsters to gain better insight into their disease and their treatment.
Kind regards
L. Boulanger
Nurse
- 28.07.2009
- In addition to what has been said, please refer to the European Consensus Guidelines which include the role of the specialist nurse and the UK CF Trust Standards of Nursing.
