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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Disease on organs
- Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
- 03.05.2017
- Stomach pain after drinking milk
- My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of ...
- 03.05.2017
- Salt capsules
- Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
- 28.04.2017
- Question on food oils
- Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of ...
- 17.03.2017
- Mutations F508del / L227R
- Hello, My 3 year old son has cystic fibrosis that was diagnosed less than a year ago. The two mutations found were F508del and L227R. As we live in Morocco we do not have a genetic counseling center that can tell us the degree of severity of this type of mutations and how this will develop in the ...
- 24.02.2017
- Vegetarian
- Hello, I am 42 years old. I've CF (pre-transplantation exams done but not yet listed), no malnutrition problem, but diabetes. I would like to considerably reduce my consommation of meat for ethical reasons (and only the meat in a 1st time), replacing it with vegetable meat type Veggifood etc ...
- 14.02.2017
- Onion
- Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
- 14.02.2017
- Vitamins and CF
- Hello My 6-year-old CF son was diagnosed only last year. We don't live in France however we could visit a CF Center in France on 2 occasions. He has ADEK, E and D vitamins from the beginning (after blood test) and K vitamin for 3 months (without any blood test). Do I have to give him vitamins ...
- 20.01.2017
- Kreon® and breastfeeding
- Hello, My daughter is 1 year old and suckles day and night in a more or less brief way. I read that breast milk contained pancreatic enzymes. Because of this, for fear of giving too much and because of fatigue at night, I stopped giving her Kreon® for a few days during feedings. But I give it ...
- 20.01.2017
- Pancreatic insufficiency
- Hello, We have just got to know that our 2-month-old CF daughter is pancreatic insufficient. Yet, nourished by breastfeading, she has, for 2 months, gained a lot of weight. Could it not be a mistake? If she can't assimilate the fat, how has she gained weight since birth? Thank you for your ...
- 20.01.2017