Topics

Disease on organs
Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
03.05.2017
Stomach pain after drinking milk
My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of ...
03.05.2017
Salt capsules
Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
28.04.2017
Question on food oils
Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of ...
17.03.2017
Mutations F508del / L227R
Hello, My 3 year old son has cystic fibrosis that was diagnosed less than a year ago. The two mutations found were F508del and L227R. As we live in Morocco we do not have a genetic counseling center that can tell us the degree of severity of this type of mutations and how this will develop in the ...
24.02.2017
Vegetarian
Hello, I am 42 years old. I've CF (pre-transplantation exams done but not yet listed), no malnutrition problem, but diabetes. I would like to considerably reduce my consommation of meat for ethical reasons (and only the meat in a 1st time), replacing it with vegetable meat type Veggifood etc ...
14.02.2017
Onion
Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
14.02.2017
Vitamins and CF
Hello My 6-year-old CF son was diagnosed only last year. We don't live in France however we could visit a CF Center in France on 2 occasions. He has ADEK, E and D vitamins from the beginning (after blood test) and K vitamin for 3 months (without any blood test). Do I have to give him vitamins ...
20.01.2017
Kreon® and breastfeeding
Hello, My daughter is 1 year old and suckles day and night in a more or less brief way. I read that breast milk contained pancreatic enzymes. Because of this, for fear of giving too much and because of fatigue at night, I stopped giving her Kreon® for a few days during feedings. But I give it ...
20.01.2017
Pancreatic insufficiency
Hello, We have just got to know that our 2-month-old CF daughter is pancreatic insufficient. Yet, nourished by breastfeading, she has, for 2 months, gained a lot of weight. Could it not be a mistake? If she can't assimilate the fat, how has she gained weight since birth? Thank you for your ...
20.01.2017
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