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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- High-calory additional food
- Is it correct from the medical and nutritional standpoint that CF patients replace the usual meals with wholefood by the "intake" of high calory additional food?
- 20.06.2011
- Strong flatulences
- Hello, I suffer again and again from a very distended stomach. After an odyssey about 2 years ago (inclusively Fructose-intolerance breathing test, endoscopy of the bowel, both with negative result) a lactose-intolerance has been diagnosed. In addition, a mis-colonization of the bowel, which ...
- 19.07.2011
- Nutrition: conventional or organic?
- Dear expert team, with regard to our daughter (3 months, F508del+R553X) we asked us the question of the later nutrition. Especially, we do ask ourselves, if the used antibiotics in the conventional keeping of animals plays a role with regard to later resistances. Therefore the questions: ...
- 08.06.2011
- question
- Hello! My name is Golita Nicoleta and I live in Galati. My daughter is 15 month old and after chronic diarrhea she took a sweat test and the value of the test was 48 mmol/l. After 2 weeks we went to another center where we repeated this test and the result was 64 mmol/l. Because she was symptomatic ...
- 07.06.2011
- Anorexia?
- My 14-year-old son has cystic fibrosis. For the last three weeks, after a gastroenteritis, he has been refusing to eat, suffering from recurring stomach aches, and he vomits if forced to eat. His weight is 47 kg for 1.72 m. His doctors consider a psychological factor as the most likely hypothesis ...
- 05.05.2011
- Salt intake in the diet
- Hello We add salt in the diet of our child to compensate for the loss of chloride ions (if I understood correctly) Are the recommended intakes exclusively NaCl (table salt) ? Or can one take the form of NaCl and KCl ? Questions arising in CF : is the organism lacking, in balance, or overdose ...
- 28.04.2011
- Weight after operation
- Dear expert team, the question about gaining weight after lung transplantation, I find it very interesting. Could it also be that after the operation the energy turnover increased? I have a similar problem. I had an operation of the abdomen (appendix), a bit more complicated, the operation took ...
- 18.04.2011
- Weight gain after lung transplantation
- Dear expert team, I am in the meantime a CF patient who has been double-lung transplanted for one year now at the age of 24 years. I am doing very well. However I have a problem in gaining weight since the lung-Tx operation. I am 176cm tall and weigh 53kg. Daily calory intake about 3000 - 5000 ...
- 12.04.2011
- Dairy products and mucus
- Hello, Before I had my second child with cystic fibrosis, I have long been treated, and my first daughter, with homeopathy. The various doctors I have consulted in this context have always recommended in cases of rhinitis or bronchitis to temporarily halt the consumption of dairy products that ...
- 28.03.2011
- Echgenic bowel in fetus
- My sister-in-law is pregnant and during an ultrasound testing the fetus was found with echogenic bowel. She got a dna testing and was found to be a carrier of a rare greek CF mutation. My brother went urgently for a dna testing to determine if he is a carrier as well. Does the echogenic bowel ...
- 28.03.2011
