Topics

Nutrition
Hi My daughter - 3 years old - is under good care in the Warsaw Mother and Child Institute - cystic fibrosis department. She doesn't need enzymes. Every day she takes 2 ml AquAdeks vitamins, 6 - 10 ml 10% NaCl, inahaltions from 4 ml 5%NaCl and lung clearing by hand two times a day. So far she ...
28.03.2011
pancreatic enzymes
If a child (2 years old), is given his enzymes prior to a meal and refuses to eat what are the possible consequences ? If antibiotics are given preventively, should it be given three times daily or if once a day is just as good? Where can I get recent  ...
24.03.2011
appendicitis/CF
What is the relation between appendicitis and CF?
24.03.2011
Growing up with CF
My baby has started chewing its food and the creon as well, or it sets it apart. Is it available as powder? What can I do? Thank you!
22.03.2011
Involvement of pancreas in CF
How would you be able to tell whether a CF that exclusively affects the lungs actually also involves the pancreas? Would a child's lack of appetite and/or smelly stool be a hint?
17.02.2011
Is there another special nutrional formula for babies apart from Cystilac®?
Hello, unfortunately, my daughter does not tolerate Cystilac®. Is there a special milk formula for babies with cystic fibrosis from another manufacturer? Many thanks in advance for your answer.
17.02.2011
Prescription of Creon without clear diagnosis of CF
Dear expert team, my son (2.5 months) is in hospital since birth. He has had a permeable small bowel and birth has therefore been induced in the 32nd week of pregnancy. Since birth we have been told by the doctors, that our child might suffer from CF, however no test has been performed yet ...
20.01.2011
nutrition
Dear expert team, I have a question about nutrition in CF. In general it is said, that the increased calory need in CF should be covered especially with an increased intake of fat. But: increased fat intake means of course also a more intensive repletion. Now it is known for years, (only the ...
18.01.2011
appetite
Recommend medicine appetite for my grandson with CF and no appetite Thanks
11.01.2011
Petition for Help
In Bulgaria we have a laboratory to measure the levels of fat-soluble vitamins! What to do?
11.01.2011
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