Topics

Motilium® 10 mg tablets
Dear expert team, I (40 years old) have adult CF an suffer from reflux esophagitis as well as small axial hiatal hernia, according to the latest gastrointestinal exam. I have been taking proton pump inhibitors for years (esomeprazole; Pantozol®/pantoprazole; agopton 30mg; earlier also ...
15.05.2012
Vitamin D target value and refund
Hello, I was just searching about your expert advice platform and found the statement that the target value for vitamin D is 20ng/ml. This is not according to the newest recommendations which suggest at least 30ng/ml. Question: Most patients do not get their vitamin D preparations reimbursed ...
15.05.2012
Vedrop®
Hello, I would like to know the latest status concering the prescription of Vedrop® in patients with cystic fibrosis. Our CF center informed me that the company withdrew the approval for individuals with CF and that therefore they do not prescribe the drug anymore since the health insurance ...
15.05.2012
Loss of appetite and refusal to drink
Hello, Could you explain us what are the different mechanisms behind the lack of appetite in a CF child? Is it always a sign of congestion or are there also digestive origins? In the same vein, do you know why our children refuse to drink in hot weather? Thank you in advance for your response.
14.05.2012
Vitamin D
Hello, My son has CF, and I just heard that his vitamin D level is only at 15 ng/ml. He is an adult of normal weight. How quickly would you saturate and in which doses? The literature has different specifications (ranging from 20.000 IU per day to 200.000 IU per day) until the value reaches 30; ...
15.05.2012
Food and cystic fibrosis
Hello, my baby has cystic fibrosis, I start diversifying food and I wonder about what is best for her knowing that she is a small frame and that one seeks to make her gain as much weight as possible ... rather strong pressure from doctors .... her diet is supplemented at night by enteral nutrition ...
08.05.2012
Creon
I am 18 years old and take creon almost regularly. I am surprised, though, that I am not thin, like the other CF patients. I am 153 cm tall/short ;-) and weigh 55kg, and I have a rather plump belly which bothers me. My question: am I taking too much or too little creon?
07.05.2012
Frequent stomach ache (underbelly)
Hello, my daughter (12 years old, CF) keeps having stomach aches in the underbelly, at times severe. She has the feeling that the stool “pushes” and that she has to go to the toilet repeatedly, although the pain rather gets worse afterwards. Quiet, distraction with positive things (e.g. ...
02.05.2012
Vitamin D and vitamin A substitution
My vitamin D value is 40ng/ml, I take 1000 I.U. cholecalciferol daily. The normal range for vitamin D is up to 100ng/ml; should I aim for a higher value? My vitamin A value is 39µg/dl, normal range 30-70 µg/dl, should I supplement vitamin A?
24.04.2012
Faecal elastase
Hello, Whereas previously the fecal elastase of my 3yr old daughter was normal (greater than 200), the last test shows a significant drop of elastase with a level of 57 like a severe pancreatic insufficiency. Is this result irreversible? Could the elastase return normal? is Creon enough to ...
24.04.2012
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