Topics

Nutrition: conventional or organic?
Dear expert team, with regard to our daughter (3 months, F508del+R553X) we asked us the question of the later nutrition. Especially, we do ask ourselves, if the used antibiotics in the conventional keeping of animals plays a role with regard to later resistances. Therefore the questions: ...
08.06.2011
question
Hello! My name is Golita Nicoleta and I live in Galati. My daughter is 15 month old and after chronic diarrhea she took a sweat test and the value of the test was 48 mmol/l. After 2 weeks we went to another center where we repeated this test and the result was 64 mmol/l. Because she was symptomatic ...
07.06.2011
Anorexia?
My 14-year-old son has cystic fibrosis. For the last three weeks, after a gastroenteritis, he has been refusing to eat, suffering from recurring stomach aches, and he vomits if forced to eat. His weight is 47 kg for 1.72 m. His doctors consider a psychological factor as the most likely hypothesis ...
05.05.2011
Salt intake in the diet
Hello We add salt in the diet of our child to compensate for the loss of chloride ions (if I understood correctly) Are the recommended intakes exclusively NaCl (table salt) ? Or can one take the form of NaCl and KCl ? Questions arising in CF : is the organism lacking, in balance, or overdose ...
28.04.2011
Weight after operation
Dear expert team, the question about gaining weight after lung transplantation, I find it very interesting. Could it also be that after the operation the energy turnover increased? I have a similar problem. I had an operation of the abdomen (appendix), a bit more complicated, the operation took ...
18.04.2011
Weight gain after lung transplantation
Dear expert team, I am in the meantime a CF patient who has been double-lung transplanted for one year now at the age of 24 years. I am doing very well. However I have a problem in gaining weight since the lung-Tx operation. I am 176cm tall and weigh 53kg. Daily calory intake about 3000 - 5000 ...
12.04.2011
Dairy products and mucus
Hello, Before I had my second child with cystic fibrosis, I have long been treated, and my first daughter, with homeopathy. The various doctors I have consulted in this context have always recommended in cases of rhinitis or bronchitis to temporarily halt the consumption of dairy products that ...
28.03.2011
Echgenic bowel in fetus
My sister-in-law is pregnant and during an ultrasound testing the fetus was found with echogenic bowel. She got a dna testing and was found to be a carrier of a rare greek CF mutation. My brother went urgently for a dna testing to determine if he is a carrier as well. Does the echogenic bowel ...
28.03.2011
Nutrition
Hi My daughter - 3 years old - is under good care in the Warsaw Mother and Child Institute - cystic fibrosis department. She doesn't need enzymes. Every day she takes 2 ml AquAdeks vitamins, 6 - 10 ml 10% NaCl, inahaltions from 4 ml 5%NaCl and lung clearing by hand two times a day. So far she ...
28.03.2011
pancreatic enzymes
If a child (2 years old), is given his enzymes prior to a meal and refuses to eat what are the possible consequences ? If antibiotics are given preventively, should it be given three times daily or if once a day is just as good? Where can I get recent  ...
24.03.2011
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