Topics

advanced research
hello, I wanted to find out the research against cystic fibrosis, which projects could emerge soon? and then at what stage is gene therapy? thank you
02.01.2012
Vertex-770 potentiator
Dear expert team, my daughters genotype is DF508 and R347P, now that the drug for G551D is going forth for approval because of its effects on the gene. Do you have any further data to support that this drug would also be effective on other class IV types like R347P as I know it has some effect on ...
05.12.2011
Ataluren® project (PTC124)
Hello Could you please give me some news about Ataluren® project and if results will be available soon ?
24.11.2011
Stem cells and CF
I would like to ask if stemcells can contribute to the therapy of CF
14.11.2011
Bronchitol®
Hello, I’ve just seen that Bronchitol® should be commercialized in Europe. Is this medicine for all cystic fibrosis patients? What are the advantages of this new medicine ??? Thank you for your answer
10.11.2011
VX 770 & G126D
Is VX-770 suitable for the mutation G126D?
27.10.2011
bronchitol®
Hello, could you please tell me if inhalative bronchitol® (dry powder of mannitol) is already available in Germany? Many thanks
10.10.2011
Heterozygous mutation F508del with deletion exon 17a and b
Dear ladies and gentlemen, is there any research about the above mentioned mutations? Could VX770 be also helpful here? What does the above mentioned mutation mean? We have been told that our daughter (1 year) will be with the utmost probability compound heterozygous. Many thanks for your ...
10.10.2011
new clinical trial
Hello Our physician told us about a new research protocol calling IGY IMPACTT ... from a Swedish laboratory. The treatment is made from egg yolk, to combat Pseudomonas aeruginosa. Can you give me information related to this treatment. Thank you
01.09.2011
G551D and delta F508 mutations
Hello! My daughter has the above mutations. Can you say something about progression? Could VX770 help? She is six months old. Would an application be too early at this point?
04.08.2011
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