Topics

Appearance of cystic fibrosis
My uncle is 83 years old and only now he was diagnosed with cystic fibrosis. I cannot imagine that because I read that this disease is congenital. Is it possible, though, that this diagnosis is correct? Many thanks N. H.
20.09.2012
symptoms of cf
Is it readily identifiable at birth?
01.08.2012
progression of the disease
Hello I have a 7 months-old child with cystic fibrosis (homozygous F508del). To date, he has no respiratory problem and is doing well with the care he’s receiving (physiotherapy, pancreatic enzymes, vitamins, sodium…). Will it continue this way? Is there an age where the disease starts to ...
10.07.2012
CF
What is the life expectancy of a baby diagnosed with CF in Canada?
25.06.2012
Aquarium and pseudomonas
(a)We have an aquarium at home. Does it impose a risk, as far as pseudomonas is concerned? Should I get rid of it, or can I take precautions? (b)What can I do, as far as cleaning the house is concerned, in order to limit the chances of my kid getting infected, at least at home? I would like to ...
02.07.2012
perspiration odor
Hello, I have CF with significant symptoms recently (2789 5G coupled with D508) I'm 50. I noticed recently a change in odor of my sweat: the soap is not enough to stop it. Previously I was sweating a lot, but was almost odorless. Do you think this much stronger smell means worsening of the ...
11.06.2012
chronic fatique
Hello, I'm 34 and I have cystic fibrosis, with a FEV1 of about 40%. I sleep at least 10 hours a night and I often need to recover in the day also. So I spend several days a week to sleep. Fatigue is mutli-factorial and complex, but I wonder if those adults with cystic fibrosis suffer from it often ...
11.06.2012
chronic diarrhea in a 1 year 6 months child
Hello, My son is 1.5 years old and he has many stools (1-2, max 3 per day but this is very rarely) about 6 months. What tests should I make for the diagnosis? I mention that bacteriological examinations were negative. Often chlamydospores of Candida occured in the stool. Stool aspect is pasty ...
25.06.2012
CF disease
Can one live longer with CF?
05.06.2012
Life expectancy
Hello, My son suffers from CF, homozygous deltaF508, class 2. Life expectancy is about 40 years, but whatever the gene. Is there a study about life expectancy of the mutation deltaF508 ? It is surely not the same if it had been a class 1 or 6. Thank you for your response.
14.05.2012
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