Topics

Frogs
Hi. I would like to know if a CF child could eat frogs and snails, knowing that these animals live in water. I think that a large cooking time for snails kills germs but maybe it works much less for frogs? Thank you.
09.04.2013
Asbestos
Hello, We are parents of a girl with CF, aged 2 years. We will move soon and have discovered that the roof of a house extension (7m2) is covered with corrugated fiber cement containing asbestos as well as a vent in the attic. The diagnosis shows that it is in good condition, but we wonder if we ...
26.03.2013
Common ivy
Hello, I have read that «common ivy» is beneficial for the treatment of bronchial inflammation, chronic bronchitis and that it favours the elimination of mucus. Can you tell me if research has been done concerning the efficacy of «common ivy» in cystic fibrosis ? Thank you in advance for ...
14.03.2013
IVIG (intravenous immunoglobulins) infusion
At age 25 I had diagnosis of Allergic bronchopulmonary aspergillosis. At 59 my current age I had a diagnosis of CF by a CF doctor. I have a Delta F508 gene and the 5T variant. I also have a Primary Immune deficiency diagnosed by an immunologist. I had no titers to the pneumonia vaccine. In ...
04.03.2013
Moisture and sea
Hello, We live in Casablanca with our 4 year old daughter who has cystic fibrosis. It is a city polluted by its industries, its untreated waste and a growing and unregulated car fleet. The climate is temperate with an average of 21 degrees (10 in winter nights and 28 in summer days). The moisture ...
28.02.2013
voice and CF
Hello I am a student in audio phonology, and I make a presentation on cystic fibrosis, and the impact of this disease on patients' vocal cords, could you tell me if there are few references in the field ? Thank you!
26.02.2013
stroll
Hello, My son is 7 months old and has cystic fibrosis. I love going for walks. But I wonder if there is weather to avoid: Rain, fog? Or a good walk is always good to take? Thank you very much!
18.02.2013
Coughing
My 10 years old CF son has strong coughs that could last 3-4 hours in a raw. He says that it scratches his throat; I think that it might be an irritating cough? What could we do? As he must not take syrup, I tried honey but with no improvement. It tires him a lot! Thanks!
04.02.2013
Pseudomonas and wind instruments
My daughter would like to learn one of the following instruments: flute (German flute), saxophone, clarinet, horn, trumpet. We are worried that a water bug (Pseudomonas) could colonize the instrument since these instruments cannot be cleaned very well. Is one of the instruments more suitable than ...
04.02.2013
Why does my son get sickly pale in the face for periods of several weeks?
My 11-year-old son, who has CF, becomes from time to time sickly pale in the face and the pallour can last several weeks. He also gets dark circles under his eyes. This happens maybe once in a year or two years. The symptoms gradually vanish. I've googled this in various CF forums and noticed ...
31.01.2013
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