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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Magnesium
- Hello Following a discussion with Dr Ravilly (ex-Head of medical department, Vaincre la mucoviscidose) regarding magnesium (Mg) in CF, I would like to have an answer from her successor or from the head of research department. My concern is the transport of Mg in the cell (and not only the level ...
- 14.07.2014
- hypersensitivity pneumonitis
- Hi can someone please help i am 35 years old and very sic i have been diagnosed with hypersensitivity pneumonitis and we dont seem to have the right medication here in australia for my condition .I dont know waht else to do thanks
- 07.07.2014
- Renal insufficiency stadium II
- Partly increased creatinin values in the blood (85/94/96/100), measurement of the glomerular filtration rate according to the MDRD formula (67ml/min/body surface on the 9th december 2013, on the 24th february 2014 - 62.7) at a control done by the general practitioner. These values fluctuate and ...
- 30.06.2014
- Painting
- Hello, we paint in our house with water based paints. Is there a risk for our son 5 years of age with cystic fibrosis ? Thank you for your answer
- 24.06.2014
- Playdough
- Hello, Can a CF child of 20 months use playdough if he respects conventional hygiene instructions? Is there a particular indication against? Thank you in advance.
- 24.06.2014
- Smell after drain = danger for health?
- Hello, I have come accross on contradictory information during my own research in the internet. I have the problem for a long time, that it smells uncomfortably in my kitchen. The source can not be localized, only one thing is clear: the smell does not come from the drains themselves (there is ...
- 26.05.2014
- Persistent diarrhea in babies
- My 13 month-old baby girl was reported suffering from a moderate form of cystic fibrosis since her 2nd month. She has food allergies and frequent constipation since birth. Stool analysis did not reveal any pancreatic problem, from what I understand. But today, she has diarrhea since a week. Not ...
- 19.05.2014
- Cannabis
- Hello, does Cannabis help in case of CF?
- 14.05.2014
- Air-exhausting systems, what has to be paid attention to
- Dear expert team, I move with my daughter (CF, 18 months old) to an appartment, where the bathroom has no window: there is an air-exhausting system (which one exactly, I do unfortunately not know). I have already looked for adequate former questions on the ecorn-cf site, however I could not make ...
- 14.05.2014
- Painting with mutation 2789+5G A
- Hello, I am carrying the mutation 2789 +5 G A. I don't have enough money to pay a painter and I absolutely must do interior work (for a healthier environment, wallpaper peeling off, accumulating dust below) and outside. I have 2 questions for you please: Outdoors, glycero paint, and water, do I ...
- 12.05.2014