Topics

Pseudomonas
My daughter (7 years old, CF), is fighting for one year her Pseudomonas infection. We have already done two i.v. therapies and she is still inhaling with Colistin. Under the therapy, the swab was about 4 months ago positive for P.a. Is there still hope after such a long-term colonization, that one ...
04.06.2016
Private swimming pool
Dear expert, We are Belgians living in Portugal. Our son is 18 months old and has CF. What is your opinion about CF and a private pool (not with friends but one which we maintain ourselves)? Is a pool with saltwater preferable (partly chlorine) or one with only chlorine? Or do you recommend ...
13.05.2016
Sailing school discovery
Hello, our 8-year old CF son will go in May with his class for a discovery sailing trip on Lake Thau, near Sète (France). The problem is that they will sail with little "optimistic" on the lake and not on the sea. The CF Center has not banned but said that it was not the ideal destination. From ...
08.04.2016
Snake and CF
Hello , My 11 years old CF daughter has a heated terrarium in her room with a spot that contains a snake. The litter is purchased in a petshop and there's inside a container with water regularly changed. What is the risk for her to have Pseudomonas aeruginosa? Knowing she would not put her nose ...
18.03.2016
Sterililzing with vaporiser: new study
A friend of mine wrote recently to the author of a study in Austria, in order for ask her about the security of a certain, very popular vaporiser (Mamajoo with drying function). The lady answered firstly, that the Mamajoo had been tested and was a hatchery for germs (via the drying function the ...
18.03.2016
CF and a child with auto-immune hepatitis
Hello, my daughter is 7 years old and suffers from CF, in her class there is a child who suffers from an auto-immune hepatitis. My daugther has already had Pseudomonas aeruginosa in the throat swab several times, is there a risk for transmission? Or is there in general a danger for one of the two ...
18.03.2016
Cleaning of a flute
My daughter is 7 years old, has CF and is learning to play the flute at the moment. The flute is made of wood, the upper part is made of synthetic material. What do we have to take into account concerning cleaning??? Is wiping of the outside enough, should one rinse the synthetic part and let it ...
06.03.2016
Building of a house - water filter?
Hello, I am 32 years old and suffer from CF with a mild course, the lung function is nearly on normal level. I am planning the building of a houlse and I ask myself, if it makes sense to provide the water supply of the house with a special water filter, that prohibits the formation of Pseudomonas ...
06.03.2016
Hygiene: the Nespresso coffee machines Nespresso, bacteria nests?
Hello, We have a Nespresso machine at home. We clean the reservoir every day and the capsules box regularly. Since the publication of typical articles below, my CF wife doesn't dare to take more coffee: Http: // bfmbusiness.bfmtv.com/entreprise/les-ma chines-a-cafe-nespresso-des-nids-a-bact ...
27.02.2016
Questions about CF
Hello, I live in Morocco and I am the mother of a 10-year-old CF child. I would like to ask some general questions related to its illness: Regarding sputum analysis We had analyzed the same sputum sample in 2 different establishments (private laboratory and a laboratory in a university ...
27.02.2016
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