Explain the disease to older siblings
Hello, we are the parents of three children aged 7, 5 and 2 years. The younger has Cystic Fibrosis. We have not explained to the older the illness of their sister. They begin to ask questions. They know she is sick, she should gain weight and eat more than them. But we do not know when to explain ...
Blooming/evolvment of CF Child
Are children with cystic fibrosis able to bloom, to evovle? If so, how? If not, why?
My girlfriend has CF. She doesn't do her treaments. What is her risk?
Dear expert team, I am the father of a daughter with CF (6). For some time, I have a romance with a young woman who also suffers from CF. She is Pseudomonas positive (mucoid form). Now my question: Can it come with the exchange of intimacies (kissing, ...) to the colonization of ...
Sexuality and cystic fibrosis
Are there any prohibited acts at risk, or that are not recommended to do during sexual activities with one's partner (including oral sex when it is the woman who has CF)?
Impact of the disease on relatives
Hello, I have two young children who live every other week with their dad, who just started a relationship with a woman with cystic fibrosis, waiting for a lung transplant. He decided to introduce her to my children, and I want to know the psychological risk for my children. I only know that she is ...
When to start school ?
Hello, In case is it possible, having the idea to spare infections, what do you think about the balance benefit/ risk to delay the beginning of school for a CF child when it is 4? Thank you
normal school
We have learned after the discovery of significant bronchiectasis that our 8 year old son has cystic fibrosis. We find this news hard and I ask myself a lot of questions, especially if he can continue his schooling normally by knowing he eats in the canteen and stays at school after the normal ...
Health and wellness
What are ways to make life easier for patients with cystic fibrosis?
progression of the disease
Hello I have a 7 months-old child with cystic fibrosis (homozygous F508del). To date, he has no respiratory problem and is doing well with the care he’s receiving (physiotherapy, pancreatic enzymes, vitamins, sodium…). Will it continue this way? Is there an age where the disease starts to ...
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