Topics

Breathing problems while sleeping
Dear expert Team, First of all, thank you very much for providing the opportunity to ask questions here. I am a 39-year-old female with CF and an FEV1 that usually hovers around 67%. There are no modulators available for my specific mutations. Despite my FEV1 still being relatively good, I ...
17.05.2026
Spermatozole
Hello, My 10-year-old son was diagnosed with and had a cyst removed from his left epididymis (spermatozole)... could this be a symptom of cystitis fibrosis?
20.02.2026
Seed ladder (vas deferens) interrupted in a baby
Hello, my son (18 months) has been operated due to a retained testicle and during the procedure, the physicians found that the seed ladder was interrupted for a length of 3 cm. They did not give any further information, only that it could be related to the retained testicle. I found in the internet ...
15.02.2021
CF and intolerance of acetylsalicylic acid
Dear ladies and gentlemen, I care for a 17-year-old patient with CF: homozygous for c.358G>A, p.(Ala120Thr), pancreatic sufficient, first diagnosis made at the age of 17; symptoms: nasal polypes for 1 year (polypes were removed 09/17 and 07/18), no pulmonary symptoms, normal lung function, ...
26.10.2018
distended gallbladder and hyperechogenic bowel
Our second baby (I am 20 weeks pregnant) was diagnosed with distended gallbladder and hyperechogenic bowel. Are these two connected, or not? Could you give us some information about the first, which is somewhat rare? Is amniocentesis advisable?
22.06.2018
ADHD and CF
Has research been done yet whether there is a correlation between ADHD and CF? Is there a link? For example regarding certain prescribed medications for CF?
11.05.2018
Anal fistula
Is there a connection between a recurrent anal fistula and CF?
08.01.2018
Thyroid gland and CF
Hello, what effects does the illness of CF has in general on the function of the thyroid gland? And are the values in the CF centers checked regularly? So, would an over- or under-function came out? Or does one has to look for it specifically? Thank you
17.07.2017
High blood pressure (associated to the intake of the pill?)
My daughter is 26 years old, has CF and persistently high blood pressure, it does not matter which drugs she takes because of CF. She is doing anti-conception with the pill. Can the pill be resposible in CF for causing other symptoms compared to a healthy women, e.g. high blood pressure? Many ...
17.07.2017
Juvenile arthritis and CF
I have a 4 year old boy who was diagnosed with juvenile arthritis 2 months ago. He has started treatment. His weight is the same the last few months, something that worries me. He weighs 14 kgr and is 103 cm tall. Since last week he has a productive cough, which has not got any better, despite ...
15.05.2017
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