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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Infection frequency / susceptibility to infection
- Hello, I am male, 28 years old, and have cystic fibrosis (CF) with the F508d mutation. I am Pseudomonas negative. For about a year now, I have been taking Kaftrio/Trikafta®, which has resulted in some improvements (almost no sputum, improved digestion, and at least some slight weight ...
- 20.02.2026
- Cataract while taking Kaftrio/Trikafta®
- Hello, Are there any experiences regarding cataracts in adolescents taking Kaftrio/Trikafta®? Can lenses be replaced in cases of cystic fibrosis, and must the medication be discontinued if cataracts develop? Thank you in advance for your reply. Sincerely,
- 20.02.2026
- Elevated CK (Creatinkinase) in a baby in case of breast-feeding of mother taking Symkevi
- My daughter is 7 months old, I breastfeed her and I do not want to stop it now. When she was 5 months old, I started again on modulators (Symkevi/Kalydeco =Tezacaftor/Ivacaftor) because I had a Pseudomonas then and I had been very ill with loss of lung function, etc. My daughter does not have any ...
- 20.01.2026
- Change from Kaftrio/Kalydeco to Alyftrek
- Hello, my daughter takes Kaftrio and Kalydeco for some years and is going to take Alyftrek instead soon. Do the blood values have to be controlled in short intervals even if there is a change from one modulator to the other and if yes, which values have to be controlled and how often? Best ...
- 20.01.2026
- Effect of Trikafta
- Dear experts, our son is 1 year old and has the mutations del508 and W1218X. We have a question on the effect of modulator therapy. He will get Kaftrio (Trikafta) due to his one del508 mutation. Is there any knowledge about the effect of Kaftrio (Trikafta) in case of this mutation combination? We ...
- 07.11.2023
