Topics

What should I do?
Immediately after his birth, my nine-month-old son underwent several Gastrografin treatments because of insufficient bowel movements. His ultrasound scan clearly showed that some amount of stool remained in his descending colon, even though he was already excreting „yellow“ stool. His stomach ...
16.11.2011
Amiloride Inhalation
My ten-month-old son suffers from CF. He has lung problems and inhales amiloride. I have read on your advisory pages that amiloride has practically fallen out of use abroad because insufficient research has been done on its effects on CF patients. Why is this medicament so widely used in our ...
13.12.2011
Rotavirus infection without symptoms
Hello, our son (three years old, in kindergarten since August), has been having rotaviruses for at least three weeks now. It was a chance finding -- the actual reasons for the exam were loss of appetite, abdominal pain and floating stools. He does not show the typical rotavirus symptoms. Is ...
27.10.2011
Grape seed oil
Have you heard about the potential effect of grape seed oil against pseudomonas?
27.10.2011
Gluten
Hello! I read that CF patients often have difficulty to digest products with gluten. This information can be found in many sites, including this one: http://www.naturosante.com/rubriques/conseils/conseil.php?24 I quote: "It was noted that children with CF are especially susceptible to ...
01.09.2011
Metagenome, type of intestinal flora and cystic fibrosis
Hello, Are there currently studies or research on the intestinal flora in patients with cystic fibrosis (impact of meconium ileus & of pancreatic insufficiency on the flora, one of three intestinal groups more present or not etc ...)? I refer to the project MetaHIT (Metagenomics of Human ...
01.09.2011
Pancreas
Why is there a maximum amount of pancreatic enzymes that can be taken? My stools remain very fat despite taking the maximum dose. I do take gastric acid inhibitors, but is there something else I can do to have less fatty stool, less flatulation and less belly aches? My fat absorption remains about ...
30.08.2011
Intake of extra salt by baby’s not harmful?
Dear, Normally spoken one says that salt is not good for baby’s, it is not good for the kidneys. Now a baby with CF does get extra salt capsules. Are you sure that there is no harm in this? Or do we just have to choose between 2 bad things? Thanks for your reaction.
01.09.2011
Diarrhea or constipation
I have a question concerning CF. I have a diagnosis of asthma (since the age of 5 years) but I also had many problems with my intestines (sometimes I had constipation, the other time I had diarrhea). I understand you cannot answer whether I suffer from a mild form of cystic fibrosis. But I would ...
30.08.2011
Uncertainty about intake of pancreatic enzymes
In Holland we seem to have some uncertainty about the intake of pancreatic enzymes. One doctors says ½ hour before the meal, the other says 10 minutes and then another one says just directly before you eat. Maybe it differs from person to person, and how do you know when you should take it? What ...
30.08.2011
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