Topics

Smecta®
Hello, In these periods of gastrointestinal epidemics or other causes of diarrhea, is smecta® contraindicated for a young CF patient in case of severe diarrhea and severe stomach pain? I read that this medicine was fixed to the mucus. Thank you!
20.01.2017
Homeopathy, probiotics and immune defense
Hello, My 3-year-old daughter has antibiotic cures (15 days) with no symptoms other than a cough that you can not get rid of (no Pseudomonas aeruginosa or other bacteria). Pharmacists often advise to take (at the end of the treatment) a cure of probiotics in order to rebalance her intestinal ...
05.12.2016
Recommended amount of eurobiol® 25000u
Hello, I am a mother of a 11-year-old child with CF (mutation Fd508). I reside in Morocco. I would like to know the number of eurobiol® 25000 unit capsules recommended for children of his age, depending on the amount of lipids in his diet. His diet is well balanced. Here below the amount of fat ...
05.12.2016
PEG yes or no?
Our daughter, 8 years old, is 121cm tall and weighs 20kg. She has a lung function of 80 - Aspergillus could be detected during bronchoscopy. Since October 2015 she did not gain weight, in spite of the fact that she is eating. We had already nutritional advice. She refuses additional food ...
07.10.2016
Curcumin
I have been told by friends, that the course of the illness of CF can be influenced positively by high dosages of curcumin. Are there any interactions with the CF-specific drugs and curcumin that have to be taken into account?
12.09.2016
Question about food hygiene
Hello, I'm a CF mother and I have questions about my diet, specifically I would like to know if foods are discouraged for us because of CF. I've always had questions about my diet and potential pathogenic germs for me. So, I have deprived me of many things for 10 years. I would therefore like ...
09.08.2016
Adjustment of Kreon dosage to vitamins
Hello, How to adjust the dose of Kreon to take it according to prescribed vitamins? Let me explain: if our children should take 1 capsule of A313, which therefore makes 50 000 IU of vitamin A, must we match the dose of Creon and give 5 capsules of Creon 12000 (+ the number of capsules based ...
09.08.2016
Symptoms in case of CF carriers
Dear experts, My nephew is suffering from CF. I myself have not been tested, if I am a carrier. Two years ago, I had the accidental finding of an IPMN (intraductal papillary mucinous neoplasia) in the pancreas. These had been removed via a Whipple operation. At the control investigation, now ...
05.08.2016
Endoscopy of the gut
Hello, Today I had an endoscopy of the gut. This was done, after I had lost uncontrolled greater amounts of stool in short time intervals. I am a 54-year-old CF patient in a relatively good health condition with an FEV1 of 50-65% (this varies according to the season) and I suffer i.a. from ...
16.07.2016
Anal prolapse is getting more frequenct since beginning of the therapy with Kreon
Our son has digestional problems for a longer time and got about 5 weeks ago for the first time an anal prolapse. The tests that had been done then revealed that he suffers from CF and the anal prolapse is therefore regarded to be cause by the illness of CF. After the first prolapse, it lasted 9 ...
16.07.2016
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