Topics

Artificial pancreas
I just read in [an online news magazine] that the development of an artificial pancreas is making progress. Will this artificial gland possibly be an option for CF patients in the future? And how do I have to imagine this – can this only affect the insulin/glucagons balance and hence treat ...
07.09.2010
Nausea and vomiting in severly ill people
Despite 24-hour oxygen administration, my son suffers from nausea and vomiting in connection with food intake. This often seems to be the case in the late stages of CF. Is there a connection with the lung/heart problem (tachycardia) or a medicinal therapy? It would be important for him to gain ...
06.09.2010
Food
Dear expert team, I have read all questions in this forum and, interestingly, have come across the question about chees. Up to now, I have not given Louis any blue cheese for fear of possible fungi. This has been clarified now. ;-) Are there any other foods which one does not think of at this ...
06.09.2010
Intestinal problems with CF
What are options and experiences regarding examination and diagnostics in case of repeated abdominal colics and assumed constipation, intestinal stenosis up to the point of quasi-obstruction of the bowels in individuals with CF? […] Wouldn’t it make sense for adult CF patients to have a ...
23.06.2010
Nutrition via port
Dear expert team, I am 21 years old and weigh about 38 kilogramms. Not enough! For this reason my physician wants me to agree on a PEG (percutaneous endoscopic gatrostomy). However this is not in my interest. Since September 2009 I have a port, as I need an iv-therapy more and more often; I am ...
21.04.2010
Blood in stool
Dear expert team, Since three days my son has blood in the stool. He stopped taking ACC® (Acetylcystein) and almost does not eat anything in order to relieve the bowel. Do you think this is necessary? Many thanks for your efforts.
16.04.2010
Anaemia
My son was diagnosed severe CF form from birth. A few times he was at ICU for ventilation. Now he is 1 year old, very active, his weight is 8,650 kg, but was some suspicion that he has anemia. We used some iron preparations (feroglobine) as well as apple or beetroot juice. How to treat anemia ...
15.04.2010
recessive CF carrier and pancreatic problems
I am a possibly carrier of the CF-gene, the disease being present in my family. I know that mild forms of the disease may be present in CF-carriers, for example resulting in infertility (a disease also prevalent in my family). My question is the following: “Is it possible, being a carrier, not to ...
23.03.2010
vitamins
It is mandatory measurement of fat-soluble vitamins in patients with cystic fibrosis?
22.03.2010
Pancreas 2
Dear Dr. d'Alquen, my daughter has the mutation R1048G and R1162G; in our CF center, as well as in your forum we have been told, that that kind of mutation probably speaks for a mild course, whereby one has never a guarantee. In the last winter my daughter had finally 7 infections of the ...
17.01.2010
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