Topics

Distented stomach
My daughter is 2 years old and was born with a meconium ileus. Therefore the diagnosis of CF was made very quickly. She has had an artificial anus that has been reposed. Since then she suffers from an extremely distended abdomen, in the ultrasound you see very very much air in the stomach and ...
08.07.2008
Atypical CF
I would like to ask: Since September my daughter has constantly been sick. She has an increased temperature, headaches, sore throat, stomach pain and frequent diarrhea. She has an atypical CF. Our pediatrician has said that she always has some virus and has prescribed her Stoptussin against the ...
23.04.2008
vitamin k
I like to know what do you believe about taking vit k. Some doctors said to us not to take it, others to take it for osteoporosis. My daughter is 19 years old.
21.04.2008
Tube feeding in Cystic Fibrosis
Hello, we have a 9-year-old son suffering from CF. He has been quite malnourished for a long time. Now, a tube shall be inserted going from the outside into the stomach (percutaneous endoscopic gastrostomie, PEG). Can somebody with experience tell me the advantages and disadvantages for patients ...
26.10.2007
Inadequate weight gain in Cystic Fibrosis
Hello, Cystic Fibrosis has been diagnosed to our daughter (9 months old at present) at the age of 3 months. Since then we tried a lot of therapeutical options as her weight gain is inadequate, in spite of the fact that she is taking pancreatic enzymes, 30mg taurin and for the last 7 weeks ...
31.10.2007
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