Topics

UVESTEROL®
Hello, For several years, press reports echo of some dangerousness of the UVESTEROL® (it seems full of dubious excipients). But this vitamin synthesis is prescribed for CF patients. Are these rumors true?Is it a question of dosage? Is it necessary to give uvesterol® ADEC to a pancreatic ...
01.08.2015
MRSA baby
Course: Our baby has had strong cough at the age of 5 months. By doing a blood cell count, an inflammation has been diagnosed in the body. He got antibiotics and after 4 days the cough went away. About 5 weeks later, he got strong diarrhea. After a week the pediatrician did a stool investigation. ...
28.07.2015
Dietary supplement
Hello, I was told about dietary supplements (Reliv) that would improve the overall condition in CF; before I start I would like to know if it was known and recommended? Thank you
28.07.2015
Pancreatic sufficiency
Hello, My 7 month old baby has CF (26AG and G542X mutations), it is currently pancreatic sufficient. If it lasts over time, from what age on can we expect him to be pancreatic insufficient and it will remain for life? thank you
19.07.2015
nutrition
I am a maternity nurse and wants to know if a mother with a CF baby can do breastfeeding.
28.06.2015
Periactine
Hello, Could you, please, talk about the use of Périactine to increase appetite and thus weight. I know that some patients use it but our CF center doesn't seem to know it. I wondered whether studies have been conducted on this medicine or if it's rather used in a isolated way. Thank you very ...
07.06.2015
cystic fibrosis and celiac disease
Hello, I was diagnosed to have celiac disease, I have no particular symptoms and I would like to know the benefit / risk of a strict gluten diet in relation to CF? What are the risks of not permanently being absent from gluten?
06.06.2015
Enzymes
Hello, I am an adult CF patient. The lung problems have always been not too severe, but I have always had problems with digestion, that manifest in an always severely distended abdomen. Now I have, since the beginning of the year, just left out the enzyme substitution completely (before about ...
04.06.2015
Food supplements
Dear experts, Our son is two years old, is very pancreatic insufficient however otherwise one does not notice anything (yet). We are very faithful in following the conventional medicine therapy, and we will pursue it in any case like recommended. Now we ask ourselves, if we could do probably ...
06.05.2015
Meaning of MCT oil (Medium Chain Triglyceride)
Hello, I discovered the existence of these oils by chance, educating me on the composition of coconut oil that I often use. I was challenged, of course, by mentioning their interest in the context of poor absorption of lipids and thus of cystic fibrosis. But, in addition, some manufacturer ...
02.04.2015
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