Σύνδεση χρήστη
Εισάγετε εδώ το όνομα χρήστη και τον κωδικό πρόσβασής σας για να συνδεθείτε στον ιστότοπο:
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Ataluren®
- Hello I’ve read that the FDA has not approved Ataluren®. I want to know if there is still hope concerning this molecule. What is the goal of the open study? Best regards
- 03.05.2013
- Phage therapy
- Hello, I read your answers concerning the phage therapy, however, reading many articles and getting information in TV-shows [the concrete links are left out her as they were in French], we wonder if due to pharmaceutical lobbying that phage therapy is not used case-by-case. Indeed, only the ...
- 03.05.2013
- NO (nitric oxide) Therapy
- Hi! A friend informed me about a new therapy with nitric oxide, which seemed to be tested in Tübingen. Did you hear about it and is the therapy useful?
- 02.05.2013
- KALYDECO®
- KALYDECO® is beneficial for the mutation G551D and some other mutations causing the same problem. I read that the KALYDECO® would neutralize gastric acidity. Am I to understand that this positive effect would apply also to the G551D mutation (and similar mutations) or probably to all patients ...
- 26.03.2013
- Kaleydeco® off-label
- Dear expert team, in the USA Kaleydeco® (active substance Ivacaftor) is already used "off-label". Patients report about positive experiences in spite of the fact that there is not the so-called celtic mutation underlying. What are the chances that one can receive in Germany the drug for the ...
- 25.03.2013
- Ataluren and ABPA
- Hello, Firstly, I would like to know where is the third phase of the drug ataluren, and secondly whether this drug is effective against ABPA in CF patients, or only effective on congestion?
- 15.03.2013
- phage therapy
- Hello. I learned today about the existence of phage therapy. What about the study of this technique on anti-infective treatment (Pseudomonas) in CF? Is it a line of research to be taken seriously? Is it already proven or is it to forget? I’m a CF patient and nobody never talked to me about this ...
- 15.03.2013
- Bronchitol®
- Hello, I would like to know if Bronchitol® (Mannitol) is finally available in France and if the study for children older than 6 years has given positive results. Thank you
- 04.03.2013
- Ataluren
- Hello, My son has a mutation concerned by Ataluren, I would like to know if new results have been publish regarding Ataluren development? Thank you in advance.
- 28.02.2013
- New drug for ΔF508 as of March 2013?
- This question is addressed directly to Prof. Dr. Burkhard Tümmler [original question was asked on the German platform of ECORN-CF]: Is it true that there will be a new drug on the market as of March 2013 which is supposed to make a "normal" healthy life possible for CF individuals with type ...
- 28.02.2013
