Σύνδεση χρήστη
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Life expectancy in case of F508del
- How high is the average life expectancy in case of F508 del homozygous?
- 17.03.2017
- CF and populations
- Hello, I would like to know why, when we do research on cystic fibrosis, it is very often said that this disease mainly affects Caucasian (European) populations. Outside, I come from Sub-Saharan Africa and my husband is a native of the Maghreb and our child suffers from cystic fibrosis. Likewise, ...
- 24.02.2017
- Unlisted mutation: Research and treatment
- Hello, We just learned the diagnosis of our baby. It has a mutation that is not listed. Will this affect his future treatment? In short, will it be less well treated than a patient with the delta 508 mutation for example? Cordially.
- 24.02.2017
- Hands and feet peeled
- My 4y old daughter has a great desquamation of the feet and hands in spite of a consultation with a dermatologist and given ointments. Is it due to a too important lack of vitamins? Does she lose too much salt? Perhaps it is not due to cystic fibrosis? Thank you for your reply.
- 14.02.2017
- History of Cystic Fibrosis
- Hello, I would like to know if cystic fibrosis has always existed since the appearance of human beings on earth or, if not, about which century this disease appeared. What evolutionary process has led to a genetic error on the CFTR gene? Thank you very much.
- 14.02.2017
- Great cold exists
- Hello, We have our 8-year-old boy with Cystic Fibrosis and we live in an area where the temperature can fall below -20 ° C. I would have liked to know at what negative temperature he could go outside? I take him to the bus in the morning by foot and then in the evening we come back from the bus ...
- 14.02.2017
- Blood test
- Hello, With a blood test, can you find out if there is an infection in a CF patient? Is there a link to white blood cells? Thank you for your reply Cordially
- 16.01.2017
- Kissing
- Hello, I am now 17 years old and suffer from CF. I have fallen in love and we are just ahead giving each other a kiss for the first time. I never had a boyfriend before. My mother is of the opinion it would be too dangerous to kiss if I suffer from CF. Is that right? Best regards, A.
- 25.11.2016
- CF in animals
- Can animals also suffer from CF or can this disease only occur in humans?
- 07.11.2016
- concert
- Hello Our CF son is 7 1/2 years old. I would like to know if he could go to a concert: his sister will celebrate her 10th birthday, and for this occasion we wish to offer a concert visit to our children, but we are concerned that there will be too many people, the weather and the date (January ...
- 19.09.2016