Σύνδεση χρήστη
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Life expectancy, male fertility
- Today life expectancy is what age? Can we have children and being a man with the disease (without adopting or use medicine)? Thank you for you reply
- 29.07.2013
- Cystic fibrosis
- DEAR EXPERT TEAM I would like to know more about the availabilty of Kalydeco® in Bulgaria and if there will be any point for someone suffering from CF with the mutations 621+1G/T, N1303K to try this medication and also if not suitable what other treatment should we look for in order to keep ...
- 22.07.2013
- Disease severity degree
- Hello, my 2-year-old CF daughter requires since birth very intensive care. The disease leaves her no lull. Today I am very worried about her life expectancy ... What are the criteria for severity of the illness? Are there still children who die young? Thank you in advance for your answer to this ...
- 15.07.2013
- We don't know if our girl has CF, it's not sure yet
- A blood sample for the genetic testing was taken just to exclude CF. If me and my husband are not CF carriers, is it possible for our child to have it? Or is it possible when both parents have CF?
- 08.07.2013
- 8 year-old girl with aquagenic keratoderma syndrom (follow up)
- I asked about your opinion on my 8 year old daughter with Aquagenic keratoderma syndrome that appeared 6 months ago. Sweat test is 26 (performed 2 months ago). We have just received the results of the genetic blood test, which is negative for the 32 CFTR mutations studied in France today. By cons ...
- 01.07.2013
- FEV1 in mild forms of cystic fibrosis
- Hello, Are FEV1 of 100 % after the age of 30, history of frequent bronchitis, immunodeficiency in childhood, rhinitis and chronic sinusitis, and unexplained abdominal pain consistent with a mild form of cystic fibrosis?
- 19.06.2013
- Hypoglycemia
- Hello, My son, eleven months old with cystic fibrosis, was hospitalized for three days after hypoglycemia (he woke up one morning in a hypotonic state and he was not able to remain upright, emergency blood glucose was 0.39). The first results are ok, nothing has been detected, we expect more ...
- 19.06.2013
- CF children
- What has to be considered in a family with two CF children? How can we live a normal life and protect our children of the exchange of bacteria?
- 12.06.2013
- Alcohol
- Hello, Can a person with CF drink alcohol? And if not why? Thank you.
- 05.06.2013
- healthy carriers
- My niece has CF, the whole family has been tested and two other children are carriers. So 1 out of 7 children has CF and 2 are carriers. The other two children are compared to the non carriers often sick, so I told my sister in law who I thought was carrier of CF in her family. This was ...
- 03.06.2013