Topics

Advice for dwelling
Hello, I am seeking your valuable advice to help me find the dwelling place that would improve my health. I am CF, 4 years ago I left Paris and pollution to be closer to the oxygen say near the forest of Fontainebleau. Unfortunately I have not thought at all to the problems that home moisture ...
13.09.2015
Aquagenic wrinkling of palms
Hi, I'm dermatologist A 20-year-old girl comes to consult me: she has been experiencing a typical 10 days clearly an aquagenic wrinkling of palms (I did the test and have well observed characteristic changes of her palms...). No personnal history of CF. Do I still worry her and have her making a ...
01.08.2015
Morphine
More commonly, morphine is used to relieve great suffering. What about for CF people in severe respiratory failure? Can they be treated with morphine if needed? If not, what is the alternative treatment, excluding analgesics?
26.07.2015
CF with 30 years
Dear expert team, I am 30 years old. As a child, I had permanent airway infections, that had to be treated frequently with antibiotics. According to my mother, I have had a CF test 3 times. This would have been 2 times borderline. Unfortunately I have no values. Today I still suffer from ...
26.07.2015
Pancreatic sufficiency
Hello, My 7 month old baby has CF (26AG and G542X mutations), it is currently pancreatic sufficient. If it lasts over time, from what age on can we expect him to be pancreatic insufficient and it will remain for life? thank you
19.07.2015
Pseudomonas aeruginosa and Staphylococcus bacteriae
Dear, Can patients with CF and lung infection with eg Pseudomonas cough up bits of tissue?
19.07.2015
CF like disease
Hello, What does this diagnosis mean for our child? (cough, bacterial colonization, pancreatic insufficiency) Friends told us that the genetic defect is not located on the usual gene but outside so that a mutation cannot be determined and thus the new therapy options cannot be ...
19.07.2015
Exacerbation after infection
I am a 40-year-old patient with CF and have 3 children. Actually I got a beginning cold last week with strong throat ache and rhinitis, after about 2 days a got a big spot (?) at the chin, which was very painful. My treating physician was unfortunately on holiday. I was right away beginning to take ...
07.07.2015
Forest manager
Can my son make a training to become a forest manager without worries or is there a big danger to get a germ or fungus?
18.06.2015
Detection of CF at a later age
Recently, a mother with CF stated that she did not know she had CF before she was pregnant. I was glad for her, but, on the other hand, I got worried. I have a child with CF (pancreatic symptoms) and other children, that have not been tested (the doctor told me to have them tested for carrying a CF ...
12.06.2015
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