Mycobacterium simiae
My daughter has been receiving ceftazidime and amikacin, followed by meropenem and amikacin and clarythromycin 500 mg bid. Because of gastrointestinal side effects, the dose of clarythromycin was recently reduced but my daughter had to stop this treatment due to these side effects. Is there another ...
Great concern – requesting an answer
Dear expert team, A friend of mine has CF. She now has the following germs in her sputum: high counts of Pseudomonas fluorescens, Burkh. gladioli, Enterobacter, Candida albicans, and masses of Haemophilus parainfluenzae. The Burkh. gladioli had been detected often before. The Pseudomonas is new. ...
IV effect
Dear CF team, I have been making the same recurring experience for several iv therapies: Before the iv: a lot of sputum and low physical fitness. One week after the start of the iv: less and lighter-colored sputum and better physical fitness –lasting for a few days. Starting with day ...
We just discovered my 12 years old CF son had Scedosporium. His FEV1 went down to 80%. Is there a treatment against this fungus to help recover his FEV1, that was always 100%? I am worried.
Hello I would like to know when resistance to antibiotics occurs. Is it smart to change regularly the maintenance dose? What are the consequences of antibiotic resistance? Are there enough effective antibiotic treatments? Thank you
On the internet I read articles highlighting the resistance of Pseudomonas aeruginosa against carbapenems. Still they are used in patients with cystic fibrosis to reduce the Pseudomonas aeruginosa (like they do with my daughter). Could you say something meaningful about this?
I would like to know what influence has the bacteria simia on cystic fibrosis
What is known about anaerobic bacteria in CF?
What is known about anaerobic bacteria in CF?
Pseudomonas, part 1 & 2
My daughter is four years old and has CF with the n1303k mutation. Despite her bad condition, the diagnosis was made only a year ago. We are at a CF clinic. Two weeks ago we went for a check-up and were told that if a swab showed a germ, I would be notified. I used to call myself, but the nurse was ...
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
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